This and That and Talk - My Transplant
As our Mayo Connect community grows, I am constantly meeting organ transplant members on a wide variety of forums with a wide range of issues that are not directly transplant specific. However, because we are all transplant recipients, we have a special connection: a unique journey and best of all - a new life! We don't always need help or advice. Many times we just want to chat with someone like us! That is my purpose in starting This and That and Talk.
Drop in and say 'Hi'. You are welcome anytime.
What do you want t to talk about? What words can you offer to someone who is on the journey? Do you have any questions for another recipient?
Interested in more discussions like this? Go to the Transplants Support Group.
@rosemarya Thanks for the support and encouragement. Prior to calling the transplant clinic I googled both prograf and cellcept and discovered that they both can cause my problem. Prior to that I was thinking I had just developed a sensitivity to something I was eating and my main suspect was salads!
I sure hope it is just a bump in the road and that once it is settled I will once again be able to eat a more healthy diet, including salads.
In the meantime, the weather is getting nice, although a bit cool this week, we are heading to Bar Harbor in Maine for the weekend with another couple, my son and daughter are both in good periods of their lives, and life is good.
JK
@contentandwell, I admire your attitude with all of this going on. But as we have agreed before, there is no good in complaining because it is what it is, and we are alive. I really hope that you get this straightened out before too long.
Previously you said these digestive problems are from the immunosuppressants. I have not experienced any similar symptoms, but I do know that many people have varying complications during 1st year. Maybe this is just one of those bumps in the road; soon to be a distant memory.
It will be interesting to find out if this will resolve with the dietary restrictions that you are implementing. Did your NP indicate anything about the time involved. I have also heard of some people who need to be changed to a different immunosuppressant meds.
Hugs,
Rosemary
@rosemarya Thanks Rosemary. I took a look but "healthy living" diets are pretty much the opposite of what I am forced to be eating now to control these digestive problems. Today I dared not leave the house again.
JK
@rosemarya I hope it will not be forever, I love salads and they are so healthy. I've found some dressings that don't say "lite" but they really are lower in calories and some are very low in sodium, and they taste great. It's Braswells. I love their vidalia peppercorn. The only ingredient in it that is not something a person would not use at home is xanthan gum and I don't think that's bad for you.
I can eat cooked veggies because then the fiber is softened and less abrasive. Same with fruits. I love oatmeal in the morning with strawberries but the only hot cereal I see on the list is cream of wheat and I think my beloved strawberries and blueberries are off limits except in very small quantities. They said to not eat things that are more than 1 gm of fiber per serving. White bread is fine.
How crazy is this? It eliminates all the healthy eating foods.
Juices are fine but I rarely drink them because lots of cals and not much better for you than sodas really, plus I love grapefruit juice which is off limits due to the immunosuppressants of course.
JK
@2011panc, @contentandwell
I am sending this link to Mayo Healthy Lifestyle Page. You might be able to find some nutrition information or recipes that might fit your needs. There are a lot of interesting topics, so I included the full page. Plus some special diets on the Fitness and Nutrition section.
http://www.mayoclinic.org/healthy-lifestyle
Rosemary
@contentandwell, No salads? Is this a forever thing, or is it temporary? Are there any veggies or fruits that are OK? Or are canned in natural juices OK?
Rosemary
@2011panc Fasting and tests are not fun at all. The stress of the testing is bad enough. I remember joking with my nurses during my 2 week hospital stint prior to transplant about the 'mayo diet' that they had me on because of so many fasting procedures.
It is amazing how Mayo can get so much accomplished in a short span of time. People here at home, cannot imaging such a thing.
Please keep in touch.
Rosemary
@2011panc, I hope that you will sleep good in your own bed tonight! I am going to be on the sidelines, and cheering for you as you proceed with your plan of action.
A lovely spring day with shopping (and finding some nice things) sound like a nice way to treat yourself after your rugged week.
Do you stay at the Gift of Life House when you go to Mayo in Rochester?
Rosemary
@2011panc Shopping is therapeutic, isn't it? Teresa
@2011panc I'm happy for you that is over now. I know how difficult it is to go for constant tests.
As you may recollect, I use a pool a lot for exercise. It's a Godsend. I have to drag myself there but afterwards I have more energy and I feel good about going. I am a sociable person but don't slow me down when I am jogging laps in the pool! I want to get them done and get out.
JK