The Bronchiectasis Care Center Network --more centers added

Posted by becleartoday @becleartoday, Mar 12, 2025

“As the prevalence of bronchiectasis and NTM lung disease grows, it is even more important for us to create this Care Center Network to improve access to high-quality, specialty care and resources patients need,” said Doreen Addrizzo-Harris, M.D., Chair of the CCN Steering Committee. “The CCN’s innovative, nationwide network will help us achieve our goals of improving care and quality of life for those with these conditions, as well as advancing toward a cure.”

The new Bronchiectasis and NTM Care Center sites are:

Cleveland Clinic Florida, Weston, Fla.
Columbia University Irving Medical Center, New York
Emory University Center for Bronchiectasis and Nontuberculous Mycobacterial Lung Disease Care, Atlanta
Georgetown University Medical Center/MedStar Georgetown University Hospital Center for Bronchiectasis and NTM Disease, Washington
Johns Hopkins Center for Nontuberculous Mycobacteria and Bronchiectasis, Baltimore
LSU Health New Orleans, New Orleans
Massachusetts General Hospital, Boston
Mayo Clinic, Rochester, Minn.
Medical University of South Carolina, Charleston, S.C.
National Jewish Health, Denver
Northwell Health Bronchiectasis and NTM Care Center at Long Island Jewish Medical Center, New Hyde Park, New York
Northwestern University, Chicago
NYU Langone Health Bronchiectasis and NTM Program, New York
Oregon Health & Science University, Portland, Ore.
Perelman School of Medicine at the University of Pennsylvania, Philadelphia
Stanford University, Stanford, Calif.
University of Alabama at Birmingham, Birmingham, Ala.
University of California, San Francisco
University of Kansas Medical Center, Kansas City, Kan.
University of Michigan Health, Ann Arbor, Mich.
University of Nebraska Medical Center, Omaha, Neb.
University of North Carolina Bronchiectasis/NTM Care and Research Center, Chapel Hill, N.C.
The University of Texas Health Science Center at Tyler, Tyler, Texas
The University of Texas Health Science Center at San Antonio, San Antonio
UVA Health, Charlottesville, Va.
Vanderbilt University Medical Center, Nashville, Tenn.
Washington University School of Medicine/Barnes-Jewish Hospital, St. Louis

The new Bronchiectasis and NTM Clinical
Associate Center sites are:

Cleveland Clinic Foundation, Cleveland
Norton Thoracic Institute at St. Joseph’s Hospital & Medical Center, Phoenix
NYC Health + Hospitals/Bellevue, New York
UC San Diego Health, San Diego
University of Miami Health System, Miami
University of Rochester Medical Center, Rochester, N.Y.

For more information about the #Bronchiectasis and #NTM Care Center Network, visit http://www.bronchandntm.org.

These are exciting times‼️

Better care is coming our way,
Linda Esposito

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

Profile picture for bayarea58 @bayarea58

@scoop thanks for this, it reflects the general discussions on BE by the experts and is a valuable check list for patients. In the context of BE, I am hoping that the Standards of Care will address things like the initial workup and sputum testing/monitoring. These areas are where local doctors seem to fall way short (in addition to airway clearance). I don't know if its because they don't know what steps to take or they ignore the steps. Hard to say. I do know that my pulmonologist doesn't seem to see any value in regular sputum testing outside of an exacerbation, which runs counter to the opinion of every BE expert I have heard speak on the issue (who recommend at least annually if no exacerbations). If I push for it, I can get it, but I have to learn it to know to push for it (as was the case for airway clearance). I think if the BE (and NTM) experts developed Standards of Care for doctors if would inform those doctors who don't know what steps to take and help patients to get the care they need with those doctors who are just ignoring best practices. That is my hope anyway.

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I agree with you! And the guidelines will make a big difference.

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I am posting this reminder here to bring the list of Bronchiectasis Care Centers back to the top, because we have a lot of requests lately for where/how to find the experts.

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Hi,

Have the next round of Centers been made public?
Dr. Daley indicated in his talk about the new drug several weeks ago that another round had been selected

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Hopefully by December. There are 25 altogether.

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Thank you so much!
We desperately need one in Oklahoma City, Oklahoma!

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Profile picture for teedlum @teedlum

Thank you so much!
We desperately need one in Oklahoma City, Oklahoma!

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Hello Did my eyes ever open up wide reading OKC. I am here in the city and have asked and asked for help to find another person in OKC with Bronchiectasis. HIPA is good in some ways but in others ways is a hindrance.
Barbara

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Profile picture for Sue, Volunteer Mentor @sueinmn

I am posting this reminder here to bring the list of Bronchiectasis Care Centers back to the top, because we have a lot of requests lately for where/how to find the experts.

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We need an updated list. Per Dr Daly, there's now about 60 BE Centers and sometime in 2026, there will be about 100. He also said that many or most of NJH patients are being referred by these centers.

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Profile picture for kathyjjb @kathyjjb

We need an updated list. Per Dr Daly, there's now about 60 BE Centers and sometime in 2026, there will be about 100. He also said that many or most of NJH patients are being referred by these centers.

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This list is being prepared by http://www.bronchandntm.org/
Please check there directly for updated information. Ot is not possible for us to maintain the updated list here as it is changing often.

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Profile picture for Sue, Volunteer Mentor @sueinmn

This list is being prepared by http://www.bronchandntm.org/
Please check there directly for updated information. Ot is not possible for us to maintain the updated list here as it is changing often.

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Thanks, Sue! It's a common theme that so many people are diagnosed by unspecialized DRS and haven't heard of nebulizing or possibly starting drug treatment too soon or at questionable doses. Not to mention that they don't know where to go in their area. It's a good topic to periodically mention and repost.

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