The beginning process of diagnosing endometrial cancer

Thank you Angie for reaching out. I'm so sorry for all you are going through. The doctor that did my biopsy turned out to be very sensitive to my needs. Now waiting for the results.
I definitely believe and feel surrounded by my angels. I appreciate all the beautiful women that have contacted me on this site as well!!! Thank you
Trish

Hi Wendy,
I'll be praying for you as well as all the women on this most helpful forum. The waiting for each step has not been easy.
Be patient with yourself, there is no right or wrong way to deal with any of this. Praying for all the best for you. Please let me know how you are doing. Trish

Your comment was so interesting to me, I thought I had one coming on yesterday my doctor got me right in and did a urine sample all was good. However he gave me a prescription for nitrofurantoin and phenazopyridine so I could get it filled. It appears to be the same each time lately. Not sure how I get it I shower everyday, use a clean towel and facecloth. I am even overly anal about washing my dilator after use. I hadn’t seen my urology specialist in 3 years so I called and made an appointment for September. I will ask him about the methenamine though infact I will even ask my doctor when I see him next week and to get a prescription for the urine test although he is always great about seeing me but he won’t give me a prescription when I have one unless I go to the office for my urine test. Thanks so much that was so helpful. I hope you also are headed in the right direction. 😍

Good it's the same organism, that helped with the plan on putting me on Methenamine. I too felt I was doing something wrong, that unclean feeling each time I tested positive drove me nuts. But I am clean and it happens as we get older. Doctor said hopefully this breaks the cycle. We certainly don't need this along with everything else!

@wendymy, how did the ultrasound go? How are you doing?

No results from the ultrasound or the biopsy yet. 🙏🏻 Thanks for checking in!

Helen, Interesting - I've just gotten the info from my Mayo Gyn that my pathology report came back with the "Endometrial endometrioid adenocarcinoma, FIGO grade 1" finding.

It was discovered because of the abnormal thickness of the endometrium - that "endometrial stripe" showed up on my renal scan - which was to find out if I had/ when my golf-ball sized kidney stone (L) showed. I, too, had multiple UTIs (4 in 8 weeks), so it was a daisy-chain of events that led to the discovery.

I had not known that I was having were symptoms of the endometrial cancer - in retrospect, possibly for over 2 years.

Waiting for my consult with gyn oncology (learned of the path report results yesterday).

I was just struck by the similarities, and how blessed I feel to have the kidney stone as I would have continued to ignore those symptoms otherwise...

@nikkiww7 Welcome to our Gynecological Cancers Support Group. Your pathology findings are the same as mine in 2019. I was stunned as I'm thinking you may be also. Still, you did indicate that the diagnosis explains symptoms you'd had for over 2 years.

When I had one UTI after another it was finally discovered that I had a "staghorn" shaped ureter kidney stone. I know how long it takes to diagnose these stones. For me, that was 30 years ago. My treatment was in-patient and outpatient lithotripsy. Was your kidney stone removed?

How fortunate that the testing you had for the kidney stone turned up endometrial cancer in the least aggressive kind. When I received my endometrial cancer diagnosis I was in my home area in the Upper Peninsula of Michigan. My gynecologist sent a referral to Mayo Clinic and I got in quickly at Mayo Clinic in Rochester, MN.

My experiences at Mayo Clinic have been this. Whenever there is a referral, follow-up, or testing, the system works efficiently and quickly. Which Mayo Clinic will you go to for your gyn oncology consult?

@naturegirl15, I am going to be going to Mayo in Rochester as well. I moved back to Iowa, and Mayo was one of the draws for this NE area of the state. The renal surgeon, also at Mayo, is postponing my "PCNL" (going in through the back to break up and retrieve that "golf ball") until after the gyn oncology work is done. Since I've had that big kidney stone for awhile, it is not as imperative and the pain is manageable. The stone removal will be another inpatient procedure with ~ 2-4 weeks of recovery time, so I'd say the summer is going to be spent driving back and forth to Mayo!

It is encouraging to hear how well you've done (for me, and for the family). I can't tell you how helpful that is. My sister-in-law and I are the only ones remaining of the 4 siblings and spouses, and the 3 young adults in the next generation (nieces and nephew) were deeply impacted. I'm being very matter of fact and minimizing this for their sake - and certainly not mentioning it to my 96-year-old mother. So all the info here is invaluable.

I saw a picture of the staghorn - the one that looks like coral - ouch! I hope you have formed no more, and are continuing to stay UTI free. Thank you so much for sharing your info and encouragement!

@nikkiww7 Hello again. Like you I spent a summer driving back and forth from Mayo to Michigan. That's when I had the radical hysterectomy and then 6 weeks later I had a total hip replacement (planned before the endometrial cancer was diagnosed).

I recall when the radiologist showed me my staghorn kidney stone on x-ray all those years ago. She was very interested in the picture and almost gleeful as she likely did not see these all that often. I was horrified but it certainly explained all those presumed UTIs. The kidney stone was infected so I ran a fever and was very ill when I wasn't on antibiotics. It took me about month to get my energy back to normal after the inpatient and outpatient procedures. That was a long time ago (1997) and so I imagine your procedure will be performed more quickly and differently than mine.

I had my hysterectomy at Mayo in 2019 as a same-day procedure. From the very beginning of the day when I registered until I was released later in the day I felt calm and well-cared for. I wish for you the same compassionate and excellent care that I received.

When is your gyn oncology surgery scheduled?