The beginning process of diagnosing endometrial cancer
Hi, I have had a positive UTI 5 times in 6 months. Along with increasing discomfort in my lower pelvis and lower back. It feels like my insides want to fall out. I had a CT scan and it said, suspicious for endometrial neoplasm. I am waiting for upcoming urgent GYN consult.
I'm so scared. Age 66. Anyone experience this and where are you in the process now. Thank you so much for responding.
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Hi Helen,
Hope all is well with you.
I go for the biopsy tomorrow.
I get very panicked at times.
I realize once the path report comes back I can never not hear what I think will be bad news ever again. I also feel and get traumatized by procedures done to certain parts of my body. Now it's the night before and I know what to do to get my mind off it. Only now I'm sitting here frozen in fear. Thank you for letting me share this, I appreciate you. Thank God for the women on this forum. Trish
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1 ReactionIt’s appalling that you haven’t heard from the ordering physician about these results. Life-altering abnormal test results should be communicated immediately. Less serious abnormal results should be communicated within one day. (Normal test results can sometimes be life-altering, too, and they also should be communicated immediately.) Most doctors today just don’t care anymore.
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2 Reactions@tishie58 No additional words are needed here. Your fear, worry, and stress levels are high and so for now just take care of you.
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1 ReactionThank you Helen! It's getting harder with each step. I tend to freeze. Like right now. I want to say more but the words aren't coming. For now I can just acknowledge your kindness and thank your husband for his expertise. Very helpful. Trish
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2 Reactions@tishie58 I know how stressful and alarming it is to see results before you have talked with the doctor. In my case, I also had to "sit" with the results over the weekend and it was really difficult. I kept imagining the worst case scenario however I also reminded myself that I would be taken care of by my medical team.
Since you work in your primary care doctor's office hopefully the doctor will be back on Monday and you can discuss these results. With the thickened endometrial lining the radiologist's report includes the words "concerning for carcinoma" because that's a possibility. I've also been told (by my husband who is a pathologist) that these words are meant to get the referring physician's attention to move to the next steps which would include hysteroscopy and to take a biopsy at that time.
What are you doing this weekend to take care of yourself? Do you have any practices that you enjoy and are helpful like meditation, yoga, exercise?
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3 Reactions@tishie58 :
Please consider reaching out to another doc to get to the bottom of this report. You should not be left hanging, waiting for the other shoe to drop, meanwhile anxiety and fear are mounting. If you have reason to be concerned then treatment in short order should be taken —perhaps elsewhere!!
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1 ReactionHi Helen,
How are you? I hot the results of the transvaginal ultrasound.
1: Uterine solitary fibroid 2 cm.
2: Endometrial lining markedly
thickened 2.4 cm concerning gor carcinoma, with increased blood flow. Hysteroscopy recommended.
3: No adnexal masses with ovaries visually obscured.
Still haven't heard back regarding result. I work for my primary doctors office. The radiology place sent report directly to me in a text message. Thank God I did have professionals to go to about this. I was literally shaking.
My own doctor and gyn doctor have not called me. My own doctor works in our off campus office. I have not even met the gyn doctor. I am sooo nervous.
Anyway thank you in advance for reading this. Trish
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2 ReactionsYes Helen any info sooner than next week will hopefully be helpful.
Yes I've had that test a while ago.
Happy to hear you're doing well.
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1 Reaction@tishie58 Oh, that’s awful that your appointment was cancelled and then rescheduled. But what can you do since your primary care provider wants you to see this doctor. The trans vaginal ultrasound may provide some information. Have you had one in the past? I’ve had these a few times. Not all that uncomfortable. It feels a little strange but the tech who did it with me told me everything that would happen, before it happened. That helped. July 11 isn’t all that far away although it’s terrible that you’ll have to wait.
All is good with me. Nothing new health wise and that’s good news.
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1 ReactionHi Helen,
How are you? My appointment was canceled 🤦♀️ the doctor has covid. I am scheduled for a transvaginal ultrasound tomorrow, so hopefully it explains more of what's going on. I have the consult appointment on July 11th ! Feels like a long time. I do hope all is well with you. Trish