The beginning process of diagnosing endometrial cancer

@jeanadair123 I keep up too on my cancer surveillance appointments. All of are different in how we process and view our cancer journeys. Once I was diagnosed with cancer that knowledge changed my view of the world, my life, and my emotional outlook. With your journey you are doing everything you can to take care of yourself and I understand why your thoughts return to cancer on some days. So do mine.

I have had a uti every month for 4 months, it is wearing me down but the fact I hate keep taking antibiotics. I had uterus cancer in 2009 and recurrence in my vaginal cuff in 2016. I also get nausea and lower back pain but I keep up on my tests CT, MRI for breast since I have had breast cancer also. Pet scan and my blood tests I also see my gynecologist oncologist annually and my regular gynecologist annually. They are aware of my trust issues since they missed my cancer before. Just be proactive that’s all you can do and try and get through a day when your thoughts are not about cancer, it’s hard. Some of my friends think I am paranoid and a hypochondriac I don’t care.

I tried to respond, didn't go through I will try later.

@tishie58 I was concentrating on you and the procedure today at 12:15 EST. I didn’t think to ask your time zone so I hope that my healing energy that I sent you was received.

Did your doctor share any information with you today? How are you feeling this evening?

Trish, I was diagnosed with Lynch syndrome before my biopsy, so I was filled with fear when finding out I had endometrial cancer.
The gynecologist who performed the procedure knew me from my yearly checkups. She was kind and showed compassion towards me.
I was in tears because of the uncertainty. My mom has been battling the same cancer for the past six years.
The doctor’s assistant held my hand during the biopsy. That was comforting.
I'll pray that you encounter angels today and that the results return negative. 🙏💓

Ohhh wow Terry! I know and am sorry for what you're going through. Did you have a feeling it was positive? The waiting is the worst. Thank you so much for responding, reach out anytime, especially during the wait times. I'll do the same.

Thank you for understanding Helen. Yes everything is as you say. I will tell the doctor or nurse, maybe even write a quick note with a few main points of the situation so I don't have to talk of it tomorrow. I'm soon going to get up and get stuff done around my apartment. My appointment is at 12:15.

Hello, Trish, The fear is there and I’m thinking perhaps the panic comes and goes? That’s how it works for me. And yes, once you see the path report and/or talk with the doctor you cannot « unhear » the news again. That’s good way of characterizing it all.

It’s difficult to trust a medical provider that you don’t know with touching your body much less doing a procedure. Do you ever tell the provider or perhaps the nurse who is getting you ready that you feel this way? I wish that more medical providers understood what trauma-informed care means.

You wrote that you know what to do for yourself. Does this include going for a walk? I know for myself that if I’m feeling really anxious and fearful I need to move. When I move and it could be walking up and down stairs in my house or going outside for a walk that the anxiety will lessen.

What time is your appointment tomorrow? I’d like to send healing energy to you and for you to feel that I and the other women here on this site are there for you.

@terry9297 Hello, and welcome to Mayo Clinic Connect. Our Gynecological Cancers Support group is here for you.

Your appointment with the GynOncologist is coming up next week which is soon although probably not soon enough for you. I know the feeling of wanting everything to move along quickly and get the consult so you know what treatment plans are recommended.

When you read the pathology report or talked with your doctor did you learn what type of endometrial cancer was diagnosed? And the Grade? (Not the Stage as that won’t be diagnosed until later). I’m asking only because you might like to read up on the kind of endometrial cancer and grade that is in your pathology report. That way you can be prepared with questions for the GynOncologist.

I was diagnosed with endometrioid adenocarcinoma, Grade 1 in 2019. I saw a GynOncologist who performed a laparoscopic hysterectomy and also removed ovaries, fallopian tubes, and cervix. It’s major surgery but I recovered more quickly then I might have thought I would. I was 67 years old when I was diagnosed. After the surgery the diagnosis was endometrioid adenocarcinoma, Grade 1, Stage 1a.

Here are some reliable websites where you can learn more about endometrial cancer.

Mayo Clinic: Endometrial Cancer:

— https://www.mayoclinic.org/diseases-conditions/endometrial-cancer/symptoms-causes/syc-20352461

American Cancer Society: What is Endometrial cancer?

— https://www.cancer.org/cancer/types/endometrial-cancer/about/what-is-endometrial-cancer.html

Will you come back here and let me know what you learn at your appointment on July 18th?

Hi Tishie58;
I just got an endometrial biopsy on July 2 myself. I'm 66. I had no symptoms, just an abnormal pap and sent for colposcopy and biopsy. The test came back positive for endometrial cancer. I couldn't stand the suspense and looked on the hospital patient portal for answers so I knew before the doctor called on the 8th, which was probably not the best thing to do. I've been researching like crazy. I can barely think of anything else.

I'm now waiting for the 18th to know what is the next step...it is an appointment with a gyne oncologist. Hopefully, just taking out the uterus will fix things, but I'm worried. Sharing the journey with you Tishie. Hopefully your biopsy will be negative. The procedure isn't too bad. I had some cramping afterwards, but nothing as bad as period cramps.
Terry9297