1. < Polymyalgia Rheumatica (PMR)

Thank you Reminder to PMR group

Posted by joycj @joycj, Jul 31 9:19pm

Just a reminder to everyone in the PMR group (as well as others). My "79 yr young" husband and I want to thank folks for their insight, care and knowledge in the group discussions. We thank Mayo Clinic Connect for this website and emails and we feel that we are not alone in this journey. This is my husband's second PMR flare and we are seeing a new doctor who is compassionate. He's on a slower taper from 10 now to 7 . With this website and the Lord, we will see this through. God bless you all.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

brooklyn1947 | @brooklyn1947 | Aug 17 2:37pm

I recently developed PMR and am taking 15 mg of Prednisone daily. I also have had Colitis for the past 4 years, & luckily I have not had any flares recently. I thought the Prednisone is helping my colitis.
For the colitis, I take Budesonide EC3 mg, every other day & Dicyclomine10 mg every day. I assumed these were helping control the inflammation.

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jlo2252 | @jlo2252 | Aug 18 12:40am
In reply to @centralflorida "Mine started about 6 weeks ago with pain in the hips and legs, which then spread..." + (show)
@centralflorida

Mine started about 6 weeks ago with pain in the hips and legs, which then spread to the shoulders and arms, especially right wrist. On the 1-10 scale, it often reached 9, especially at night, when the OTC pain medications just didn't seem to work. After several visits to my Dr. and a ton of blood work, he diagnosed PMR. He has referred me to a rheumatologist, but at this point nothing looks very good. Dr. injected 40 mg of Methylprednisolone Succ yesterday, the result of which was that it greatly reduced the pain but made it almost impossible to get any sleep last night. He has prescribed oral prednisone 50 mg. daily, but the pharmacist had a question about it, so I can't get it until the doctor answers his question. I cannot think of anything in my life, physical or otherwise, which prompted PMR. But I'm glad I found this group. I don't know anyone who has every had PMR; but at least I am now in touch with others like myself. God bless you all!

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Usually when they give an injection of a steroid, you start your oral dose of steroids the next day. I’ve had problems with insomnia from the shots too—it is normal to experience this. Every person is different in the amount of steroids they are given. 50 mg. Is on the high side but is certainly not unusual to start at—your inflammatory markers were probably very elevated, causing you great pain. Wishing you great pain relief on your PMR journey!

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trina24 | @trina24 | Aug 19 9:03am

I could not take Predisone, I am on infusion of Actemra. It is helping.Trins

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