Occipital Neuralgia Headache: Terrible pain lasting weeks, what helps?

@suszy39 I will be prepared when I see the Dr. I already have questions based on things that you and others have said. I want to go to England to see my sister but until I know for sure that things are good I won't do it. She doesn't live near any military hospitals so If I had a problem I could end up paying an arm and a leg and I don't want to do that. Besides that I want to enjoy my visit with her. I do not want to be hampered by this issue I have. Hang in there @suszy39 @rnlorena

@rnlorena Best of Luck today this could be your answer.

@suszy39 So the procedure is to burn the occipital nerves. So an ablation with no improvement? Could they have possibly not gotten the entire nerves ablated ? Just a thought? I am ready for an ablation. Based on what you guys have said I most definitely will have questions. I have already done a deeper dive into this. (More reading). Sharing information is a good thing and I appreciate everyone’s information. After my appt. I will come back and let you guys know what occurred. Meanwhile I will be writing questions that are popping into my head right now. I myself have gone through a few Doctors. I think it is important to have one that you feel comfortable with. I myself have met a few that make me wonder how they ever became a Doctor. My hope for all of us is to get better! @rnlorena

@pierwell I was wondering myself. I had one ablation a few years ago (no improvment). Pain Dr.
said it usually isn't a good sign for a 2nd. But I think I will ask my new Pain Dr. Hoping our days
get better....

@rnlorena I totally agree. I made appt. with my new PA @Neuaglist I laid it all out. I need some
help during my Flair Up's she did agree I will be starting on Ovloxeline soon? have no idea
I wanted to try combo of Valium/Medrol she said Oh Valium is addtive (so what) if it works!!!!
We will also do Botox when approved by my Ins. As the world turns. Another sleepless night
with pain.

@suszy39 I have been seeing since 2021 the changes in the medical field. It is not good. We have to be our own advocates for sure. I am not and have not ever been a mean person in any way but one can only take so much. I may have to say my piece one day and let it out. @rnlorena

@suszy39 I had CT's and MRI's and nothing. I just started back with head pressure again. It started a short while ago. I had the nerve block on the 8th and the pressure started back up again. If I have to I will go to the ER. It is different today. It feels like someone put my head in a vice. I called and asked for a sooner appt with my pain Dr. The soonest is the 27th of this month. We will see. @rnlorena

@rnlorena Keep us posted. Wonder what they will come up with? Have you had any MRI"s?

@lisalucier Well good for you your Drs. are helping you. Some folks get no relief from these
strong Meds. and usually Drs. hesitate to give us anything. One buringing of C-2, C-3 C-4 no
improvment. trigger shorts every 4months. Some times I can go without a Headachs but then
A #10 Flair Up lasting 17-20 days. They are benning in three wks giving me Nerve Blocks? have
you ever had them or Botox? Some folks get real relief. Ice packs for the #10 Ice Pick pain
both sides of my head, over top and into my eyes. This sight has been so helpful , the maine reminding me there are others who "know exactly how awful this pain can be"
Welcome

Suszy fr Northern Calif.

@sinyaale Hardest part for me is putting my daily Life on hold until my "Flair Up" is over.
I had them about 19yrs. however they seemed to be getting more servere. I have been taking
trigger shots, last about three months (sometimes;) My Pain Dr. wants me to have nerve block
three wks (more like Botox). my biggest 2nd issue there isn't anything to take to relieve pain
when my is flaring up. I have an appt. with Nueaglist today to see what they can do. If you have
reg Migranes their seems to be more help. I just ordered a rolled pillow to sleep on my precious
Down Pillows are being put away they are to soft, my neck needs more support. I love two sights
on hand massage: Kayla Duncan LMT I especially listen to her as she at one time suffered from ON. very iinteresting I just started doing them. Aslo a fellow from Cananda Dr. Jon Saunders "Magic Muscle Neck" He seems very good easy to understand. Never give up you will get some help, I love this sight, because We Do Understand What You Are Facing Sometimes for Weeks On End.