Teriparatide and transition after 2 years

Posted by Mary @mjb24, 5 days ago

I was diagnosed with Osteoporosis 3 weeks ago and my doctor wanted me to start on Prolia. I held off because I needed time to digest this diagnosis and research Prolia. I have spent the past 3 weeks researching Prolia along with the other available medications, exercise, vitamins and supplements. This forum has offered so much and has been a big help! At the start, I was in denial at having to take another drug but I am coming to the realization that I may need to do this. I am leaning toward Forteo, however, my insurance will only cover an alternative teriparatide by Alvogen. My question is after the teriparatide I understand the need to transition to another drug to seal in the gains. For that I am looking at Reclast. But for how long do you have to remain on Reclast or another drug?

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for md79 @md79

@ipg Hi, I am 70 y.o. As I mentioned, I had a subtotal hysterectomy at age 34, but a small piece of one of my ovaries did not function. I was on Premarin until age 50. Since July, I have been on a transdermal estradiol patch 0.025 mg.
I hope this information is helpful.

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@md79
I’m sorry for having to repeat yourself; I can’t locate the original thread. I’m 70 also. Should I contemplate using an anabolic first ie forteo, all 3 docs that I have seen from major hospitals rejected HRT. I will not consider Reclast , fosamax etc. one said, similar to Dr Lucas I believe that if you have a good result with an anabolic, maintain after that with good nutrition and weight training Did you use anything other than Premarin prior to the patch?

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Profile picture for njx58 @njx58

@gently I hear you.

I repeat that osteoporosis is an unbelievably frustrating condition. It has to be the most poorly treated disease. The face that people have to use forums like this to find out basic things that THEIR DOCTOR DOESN'T TELL THEM is beyond ridiculous. "Here - you figure out what medication to take!" Luckily, there are people like you willing to share information for those fortunate enough to stumble onto this site. 🙂

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@njx58, I wonder if this has been your experience. Do you think it is more difficult for men? I'm curious if you have thoughts about why some patients are not given enough information.
Osteoporosis is a neglected malady but has been for a long time. The disease didn't even get a new class of drugs for thirty plus years. You could say since the 50s but bisphosphonates became more common in the 70s. Do you think the doctors aren't telling what they know,
or that they just don't know. I've seen a lot of endocrinologist and they have all been good. I had a much more difficult time getting cancer care.

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Profile picture for gently @gently

@njx58, I wonder if this has been your experience. Do you think it is more difficult for men? I'm curious if you have thoughts about why some patients are not given enough information.
Osteoporosis is a neglected malady but has been for a long time. The disease didn't even get a new class of drugs for thirty plus years. You could say since the 50s but bisphosphonates became more common in the 70s. Do you think the doctors aren't telling what they know,
or that they just don't know. I've seen a lot of endocrinologist and they have all been good. I had a much more difficult time getting cancer care.

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@gently Definitely more difficult for men because doctors don't even think about it! I had a compression fracture, not from a fall, and my orthopedist said nothing about bone density. It didn't even enter his mind. And then my GP didn't know anything more than "take Fosamax." I feel bad for the people who listen to their doctors and get the wrong treatment.

I feel like every GP should attend a seminar on osteoporosis treatment protocol, becase some of them are working off information they learned before anabolics even existed.

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Profile picture for njx58 @njx58

@gently Definitely more difficult for men because doctors don't even think about it! I had a compression fracture, not from a fall, and my orthopedist said nothing about bone density. It didn't even enter his mind. And then my GP didn't know anything more than "take Fosamax." I feel bad for the people who listen to their doctors and get the wrong treatment.

I feel like every GP should attend a seminar on osteoporosis treatment protocol, becase some of them are working off information they learned before anabolics even existed.

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so, @njx58 how did you get diagnosed find find an endocrinologist and Tymlos. What led you to Mayo Connect.

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Profile picture for njx58 @njx58

@gently I hear you.

I repeat that osteoporosis is an unbelievably frustrating condition. It has to be the most poorly treated disease. The face that people have to use forums like this to find out basic things that THEIR DOCTOR DOESN'T TELL THEM is beyond ridiculous. "Here - you figure out what medication to take!" Luckily, there are people like you willing to share information for those fortunate enough to stumble onto this site. 🙂

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@njx58 I absolutely agree with you. All I got from my doctor was, you have osteoporosis and your numbers are bad so you don't want to wait to start on meds. I have many patients who do well on Prolia and you can stay on it indefinitely. I told her she could verify if my insurance would cover it but I wasn't going to make a decision yet. Since that appointment, I have been reading and watching a bunch of utube videos. This forum has been a wealth of information! It is overwhelming and frustrating trying to sort through all the information.

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