1. < Stroke & Cerebrovascular Diseases

Temporal Arteritis

Posted by Harriet @harriet, Nov 14, 2011

Any info on treatment for temporal arteritis after 2 years onset. Mother dx in Jan'09 and still with severe symptoms with tapering of prednisone. Now at 20 mg, but with headaches, stomach problems-nausea, weakness, and generally not feeling well. Any info would be helpful? Has anyone been cured and completely off prednisone and how long did it take. My mother is 89 and is becoming very frail, shakey, and weak.

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cindyb940 | @cindyb940 | Nov 3, 2019
In reply to @cindyb940 "I was prescribed high dose of Cortisone for 2 weeks and tapered off the drug. Prednisone..." + (show)
@cindyb940

I was prescribed high dose of Cortisone for 2 weeks and tapered off the drug. Prednisone played havoc with my gut and took me a couple weeks after the treatment to feel better. I am now in remission and Dr. McHenry will continue to monitor my eyesight, because there could be a relapse.

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He also prescribed prism lens in my eyeglass prescription . My vision is stabilized.

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Mentor
John, Volunteer Mentor | @johnbishop | Nov 4, 2019
In reply to @cindyb940 "He also prescribed prism lens in my eyeglass prescription . My vision is stabilized." + (show)
@cindyb940

He also prescribed prism lens in my eyeglass prescription . My vision is stabilized.

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Hi @cindyb940 -- Welcome to Connect. Thank you for sharing your post. I'm happy to hear your Temporal Arteritis is in remission and your vision has stabilized. Have you had to make any other lifestyle changes that help?

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artist01 | @artist01 | Jan 2, 2021
In reply to @johnbishop "Hi @shirley17, I would like to add my welcome to Connect along with Collen (@colleenyoung). I..." + (show)
@johnbishop

Hi @shirley17, I would like to add my welcome to Connect along with Collen (@colleenyoung). I agree with Colleen that I would hope your doctor can explain or treat the swelling in your feet and ankles. I have polymyalgia rheumatica (PMR) and take prednisone which I believe is for the inflammation of the joints in my case. It sounds like the prednisone was started when you were recently diagnosed. Have you been back to see your doctor since you were diagnosed with temporal arteritis?

I would recommend talking with your doctor about your swelling in the feet and ankles as soon as you can. You might want to try and keep your legs elevated when possible to help with the swelling. Mayo Clinic has a symptom checker that you can use to help identify some of the common causes for swelling in the feet and legs. Here is the link:

https://www.mayoclinic.org/symptom-checker/foot-swelling-or-leg-swelling-adult/related-factors/itt-20009075

John

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Hi John. Could you please link me back to more recent posts? I just became a GCA member in December of 2020. Many thanks, Laurie (artist01)

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Mentor
John, Volunteer Mentor | @johnbishop | Jan 2, 2021
In reply to @artist01 "Hi John. Could you please link me back to more recent posts? I just became a..." + (show)
@artist01

Hi John. Could you please link me back to more recent posts? I just became a GCA member in December of 2020. Many thanks, Laurie (artist01)

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Hi Laurie @artist01, Here are 2 more recent discussions on medications for GCA:

- What's your experience with Actemra for GCA?: https://connect.mayoclinic.org/discussion/gca-1/
- Medications for Temporal Arteritis/Giant Cell Arteritis (GCA): https://connect.mayoclinic.org/discussion/temperol-arteritis-or-giant-cell-arteritis/

You might also find the following information helpful from the American College of Rheumatology.
- Giant Cell Arteritis - Fast Facts: https://www.rheumatology.org/I-Am-A/Patient-Caregiver/Diseases-Conditions/Giant-Cell-Arteritis

Is there any specific information you are looking for that I can help you find?

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