TBI and brain aneurysms

Posted by kristivila @kristivila, May 7, 2018

I have had two brain aneurysms, one that burst. I know I am blessed to be alive, but struggle everyday. I get depressed and my memory is toast. I look good so people don’t seem to believe that I struggle. It seems that as time goes by, I get worse. My doctor’s don’t take me seriously because I look healthy. I think that if you don’t look disabled, people have no empathy. Even my family doesn’t seem to care. I just want to give up and I am tired all the time. I am partially blind in one eye and fall over a lot. I loose everything. I sometimes forget a whole day

@0629

It has to be hard. I’m so sorry you’re feeling this way. Try telling your family exactly what you wrote. Maybe they will better understand. I am sitting here with my husband who is in the ICU. day 3. Still much pain. Won’t eat. I’m desperately worried

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@0629 Hello Laura,

I appreciate your keeping in touch. As Colleen, @colleenyoung, mentioned in her post, please take a look at the discussions regarding ICU experiences. Being in the ICU is most unique and others can identify with what you are going through.

I look forward to hearing from you again.

Teresa

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@colleenyoung

Hi @kristivila,
Let me connect you with a few other members who can relate to your story about "you don't look sick". Please meet @kariulrich @kdubois and @dawnpereda.

Kristi, did the brain aneurysms happen as a result of an traumatic brain injury in your case?

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Hi , I also have been diagnosed with 2 small brain aneurysms and have to be monitored every 6 months , but these are cerebral. incidental findings after I went to hospital with left sided heaviness feeling. very frightening to live with..

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I also had a medical scare while being hospitalized for an unrelated issue. CT scans exposed a small brain tumor up against the “vein of Galian”.
Almost exactly the size of a “good-n-plenty” candy.
To have a doctor come up to me and say…”has anyone ever told you that you have a brain tumor??”
Was quite eye opening. I might have had it my whole life and nobody just looked there…but they figured out it could just be a LIPOMA. I have had headaches for several years but no results to why.
So hang in there … you are NOT ALONE with scary medical issues.

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Hello @larrynauta

I see that you are new to Mayo Connect and I would like to welcome you. I appreciate your posting in this discussion. At Mayo Connect, we are not medical professionals, just patients like yourself. We are here to offer a listening ear as you work through your questions and concerns.

I can understand your concern regarding this new diagnosis of a brain tumor. It is understandable that you would find it frightening.

Is there any further investigation planned for this tumor? Do your doctors think your headaches are related to this?

Please remember that it is always your option to get a second opinion for any of your health concerns.

I hope that you continue to post regarding your concerns and any treatment that will be done. I look forward to hearing from you.

Teresa

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@0629

It has to be hard. I’m so sorry you’re feeling this way. Try telling your family exactly what you wrote. Maybe they will better understand. I am sitting here with my husband who is in the ICU. day 3. Still much pain. Won’t eat. I’m desperately worried

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@0629 Hello Laura:

It has been a few days since you last posted. Has there been any change in your husband's condition? I hope you are doing well.

Teresa

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Hi and good morning to you all,I think the best place for me to start would be at the begging "1988" this was the year that I joined the British Army,and I had just turned "19year's old"as i I'm from Glasgow I joined my own local Regiment(1st Bn RHF)and I was based in Edinburgh,I finished my basic training and then I joined my regiment(Battalion)on the" 20th August 1988" we didn't really do that much except Gaurd Duty and plenty Drill,the Battalion was just getting ready to "stand down" for Christmas and New Year holidays,then the FULL Battalion was told to assemble on the parade square and it was then we were told that a plane has crashed in the borders town of Lockerbie and that we were to get kitted u up because we were heading down there with immediate effect the date was "21st December 1988" we had little to no knowledge of what to expect,to be honest with you we all thought that it would have been a "micro light"plane that one of the rich land owners had bought himself for Christmas,because back then we had no social media or mobile phones so we were TOTALLY UNPREPARED for what we saw when we got closer(25 miles away we could all see a glow in the sky from down in the direction that our coaches were heading,but believe me being a young fresh faced boy(just the same as all the other Fusiliers)because we were a young Battalion,we grew up VERY VERY FAST over the" 3 and a half "day's and night'a that we spent in and around Lockerbie and at "21.00hrs" our Commanding officer called us to the town square and told us we'll done now go home and have a great Christmas and New Year and don't any of you dare then up late for duty,since "21st December 1988" I've NEVER been able to celebrate a Christmas OR a New Year(not even with my son as he was growing up)he fully understands now BUT even now that I've got two beautiful grandkids I lock myself away until later on on Christmas night(ABSOLUTELY NO FORM OF COUNSELLING OFFERED TO ANYBODY WHO WAS DEPLOYED TO THE LOCKERBIE DISASTER)and I'm going to end my post here,and for those who have taken your time to read it then I thank you gratefully
B 1st Bn RHF

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I completely understand-same here-I carry myself well – it takes a lot of time and effort to do that-so nobody believes I have severe problems except doctors when they review head tests-it hurts and people make you feel like a liar-I am sorry

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I have whole years I can’t remember. I was in a coma for five weeks from a broken neck. One thing I learned. Don’t be negative. Look forward. Have hope. Things will get better.

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Hello Kristi, My name is Michelle Bunge although I can not relate personally to your struggles I am familiar as 3 of my family members have had TBI so I am a witness of it and have nothing but compassion and respect for your "invisible injury". I work for the Minnesota Brain Injury Alliance and wanted to make you aware of the support, resources and programs we have available for you at no cost, specifically our Resource Facilitation program. It has made a world difference for my brother and his family's lives. Our mission is to enhance the quality of life for those coping with the sudden and long-term effects of a brain injury. Feel free to check out our website if you would like to learn more. Please know you are not alone, people care, and you have a lot of potential we can help you navigate back to. Prayers and thoughts go to you. Also please feel free to reach out to me anytime!

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