TBI = Traumatic Brain Injury & Concussion

Posted by gregd1956 @gregd1956, Dec 1, 2023

>>> TBI – Brain Injury <

Interested in more discussions like this? Go to the Traumatic Brain Injury (TBI) Support Group.

@gregd1956

Who have a >TBI< from an accident - falling down, riding a car/motorcycle, suicide (but still alive). Some people, that I know, we’re really young and has a TBI. Others, like me (68 yo), the age turns to a different way than the little kids. Our life has changed - a little different way than “normal” ways 🙃

1) Having a TBI, might be: close friends, families or closed families, or yourself? ❤️

2) How can you help, daily, the best-friends, families, or yourself? 😉

3) How about exercising like talking daily with someone, lifting your body, walking inside or outside your home, cooking, cleaning , helping, and on… 😉

4) Who loves MAYO and why? ❤️

Jump to this post

Hi. I had a moderate TBI 30 years ago from a rollerblade fall. Damaged my basal frontal and left temporal lobes (skull fracture over left ear). A lot of my recovery was the first 1.5 years; the rest took ~10 years. Keeping friends/family is hard when your life changes so much, hugs to your wife. I have some deficits in remembering names and numbers, emotions are closer to the surface (technically an improvement over the old me), and smell and taste is around 80%. I bike a lot, try to learn new things, read, do crossword puzzles, cook, and garden to keep my brain engaged. I am a retired research scientist, so live in my head, which probably helped my rewiring. Great that you play music; that is good as well.

REPLY

Thinks-again. I’m glad you can ride your bicycle and those great different ways that helps your brain 😉 For me, eating/drinking is a little higher (close 110% than before my TBI) than my wife… my balance lost and fall-down than before.. it wan’t my TBI - that makes my body is too easy of falling-down, hitting my head and others; 2 years ago I fell down in my gurage when our car stopped…I went to my newest eye-doctor that could help me on my eyes… well, I had a deep off sun and fell-down on my top-legs… after that mylife changed my physical with deeper problems like cutting out grasses, standing up to fix things, walking more… well,I’m here again after my TBI ❤️

REPLY

Hey, thanks… did I or could I rider my bicycle? Yes, riding my 3- bicycle… I can’t ride a regular bike - now or even after my TBI…

REPLY

My injury happened when I fell off a ladder while cleaning the gutters on my house. That was 20 years ago, and I was 53. Spent 3 months in 3 different hospitals, a craniotomy surgery, 9 months at home and speech & occupational therapy. I worked for a library system, and librarians (my supervisors and co-workers/friends) searched and read every book they could find about TBI and gave me all the time I needed, and was able to back to my pre-injury work at the 12 month mark.

I think that one of the most important things to guide recovery is knowing that our brains are still rewiring itself. I feel that; I'm at 90-95% of the pre-injury person; feel that I'm still healing/recovering and gaining. Will I ever get back to 100%. I don't know, maybe, maybe not, but it doesn't matter, because I'm OK with what I have now. Doctors told me, and my family, that recovery is a 1-2 year process. Those doctors were wrong, I am still gaining. We (the royal "we") survived, and are still recovering. Finding a reason, any reason, to wake up & get out of bed. Move forward, not letting your injury define you, to "be here now". Take a walk in a park or around a creek, listen to birds, find a safe place (local mall) where you can "people watch". Volunteer.

REPLY

One thing that I remember from my TBI decades ago was that I was so narrow in my focus of getting back to who I was, that I didn't see that I was still me. Brain injuries smack us around emotionally and cognitively. In some ways I'm better emotionally than before, when I had high walls that kept people out. I do have aphasia, but everyone has work arounds for abilities that are less. Even without injuries, it is important to keep learning and moving.

REPLY

Here's U.S. solders some gone & others "injured". Injured is a big part for soldiers, some get brain-injuries, including last Sunday. A few months ago, our military ship was hit for 15+ soldiers and many of them has a TBI in that ship.

These lives has changed.

REPLY

❤️ This week a High School, in Newport News, had a young teenager falling down on the ground of the parking lot.

She was walking, but during that moment, she had a seizure then hit her head from her brain-injury (TBI) and then died. Her lost of blood ended her life. I’m so sorry for her family, specially her mom & dad.

Be careful to all of us… TBIs or strokes (like smoking cigarettes or drinking deep alcohol) could change our life that we never felt before: big problems within our physically, mentally, and emotionally mind. ❤️

REPLY

Yes indeed, being careful of ourselves is one of the most important things we survivors have to figure out. We only have, and will only have, is one brain. Take care of it above all else.

REPLY
@kayabbott

One thing that I remember from my TBI decades ago was that I was so narrow in my focus of getting back to who I was, that I didn't see that I was still me. Brain injuries smack us around emotionally and cognitively. In some ways I'm better emotionally than before, when I had high walls that kept people out. I do have aphasia, but everyone has work arounds for abilities that are less. Even without injuries, it is important to keep learning and moving.

Jump to this post

You are writing quite well for aphasia. Are you beginning to connect names to common objects and recall what they are used for from decades of aphasia and learning again?

REPLY
@sudutoo

You are writing quite well for aphasia. Are you beginning to connect names to common objects and recall what they are used for from decades of aphasia and learning again?

Jump to this post

I'm actually a research scientist and have about 135 publications. I wrote my doctoral dissertation while recovering, 31 years ago (5 month deadline). So, the aphasia isn't disabling, I just have work arounds to find words and numbers, lists, spell check, crossword puzzles, and such. I don't know if being female (larger corpus callosum) and left handed factor in on rewiring, but the brain is like everything else. If you don't use it, you lose it.

REPLY
Please sign in or register to post a reply.