TAVR procedure recommended for me

Posted by toshy @toshy, 1 day ago

I have done a lot of research on TAVR procedure. Structural Heart team suggest I do the TAVR procedure for my severe aortic stenosis. However, the risks of both regular and silent strokes are very concerning. Particularly, the chance of silent strokes happening are 75% - 100%! This is extremely scary as I never had a stroke. Without TAVR, mortality rate is bad also. Would greatly appreciate input from anyone who had a TAVR procedure and your outcomes. Thank you. Regards

Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.

You might find this recent discussion helpful. Feel free to ask more questions, though. It's day surgery for the vast majority of patients. The risks for stroke are mitigated by DOACs or direct-acting oral anticoagulants, and you may be given heparin and/or Plavix just prior to the procedure...as in, one hour before or less:
https://connect.mayoclinic.org/discussion/aortic-valve-replacement/

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Thank you for your reply. I have read all the discussions re TAVR. I have also done tons of research on the internet on multiple sites every day for the past month. I also checked patient forum support groups (there are not too many relating to TAVR). I understand the risks of strokes are mitigated by DOACs etc., however the high percentage of 75% silent strokes after procedure when the cardiologist is no longer around and we have to go to neurology (bad area) is worrisome to say the least! Strange, that with all the info available, no one patient admits or comments on how they are doing after stroke hits them and what their cardiologist says about it or helps with it!
Even with the Sentinel embolic device which is used during TAVR by some doctors, the left vertebral artery is still left unprotected. The debris from this as well as when the Sentinel device is removed, can cause and has caused strokes during TAVR. So I am unfortunately still in limbo - bad if I do TAVR and bad if I don't! Thank you.

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If anyone has had TAVR, please advise where I can find helpful and frank information about how it turned out days/weeks/months afterwards and if you had any strokes. I do realize that each patient is inherently different, but the decision to go forward with TAVR is either enjoy the time I have left without worrying of imminent demise, or get the procedure and keep dreading of stroke possibilities happening any time, anywhere with limited mortality!
Thank you.

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Mom, 96 had it. Gave her another 2 years. No side effects. Eliquis. No stroke.

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My father had one at 91. He did fine. This was after both hips replaced between 87 and 89, an endarterectomy at 86, and a fundoplication )fundal wrap) for a hiatus hernia at 89. Good times. 😀

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@toshy

If anyone has had TAVR, please advise where I can find helpful and frank information about how it turned out days/weeks/months afterwards and if you had any strokes. I do realize that each patient is inherently different, but the decision to go forward with TAVR is either enjoy the time I have left without worrying of imminent demise, or get the procedure and keep dreading of stroke possibilities happening any time, anywhere with limited mortality!
Thank you.

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I feel your pain. I am in the same position. I feel fine. I'm 83. Just don't know what to do? Have an appointment with a valve specialist next week. I will post my information. Thank you for sharing.

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@gloaming

My father had one at 91. He did fine. This was after both hips replaced between 87 and 89, an endarterectomy at 86, and a fundoplication )fundal wrap) for a hiatus hernia at 89. Good times. 😀

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Thank you for your reply. If you don't mind, please advise which state your father had the TAVR procedure done. I am in Colorado. I would prefer Mayo Clinic, but the follow ups become a problem, so I have to stay here in the Denver area.
Please advise if he had any kind of stroke during or after TAVR. Thank you so much.

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@marianneward

I feel your pain. I am in the same position. I feel fine. I'm 83. Just don't know what to do? Have an appointment with a valve specialist next week. I will post my information. Thank you for sharing.

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Thank you for your response. I am 80. I am very interested in your aortic valve specialists' comments. I have severe aortic stenosis and they are pushing me to get TAVR.

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Well, I will be sure to let you know what the specialist has to say. In the past, I had three cancer surgeries. The thought of going back into the hospital is not inviting. I want to avoid the TAVR. After reading some of the information regarding the TAVR procedure. It seems to be the luck of the draw. Of course, there are no guarantees, but since I feel well, have no symptoms. I just don't want to look for trouble. To be continued.....

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@toshy

Thank you for your reply. If you don't mind, please advise which state your father had the TAVR procedure done. I am in Colorado. I would prefer Mayo Clinic, but the follow ups become a problem, so I have to stay here in the Denver area.
Please advise if he had any kind of stroke during or after TAVR. Thank you so much.

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This was in Victoria, British Columbia. The procedures are widely the same with only minor protocol differences. I am sure you have crackerjack heart surgeons in Denver.
No stroke. He turned 93 in March. I drive him to gospel sing-along every Thursday.

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