Talking with your doctor about idiopathic hypersomnia...

Posted by toryinhampton @toryinhampton, Apr 20, 2023

During this past year, I was diagnosed with idiopathic hypersomnia. After trialing several medication's the only option that appeared to have an effect on this disorder was Adderall. Though I am on 30 mg of Adderall XR in the morning and 20 mg of Adderall in the afternoon, I am still having difficulties in staying awake. How do I address this topic with my provider and share with him that the current dosage is not working? I am concerned my doctor may believe I am drug seeking, and I'm finding it difficult to have this conversation. My mother was a prescription drug addict, and I am extremely aware and careful with everything I take.

Interested in more discussions like this? Go to the Sleep Health Support Group.

@amandajro

Hello @SusanEllen66. You will see that I have moved your post into an existing discussion on IH that you can now find here:
- Talking with your doctor about idiopathic hypersomnia...: https://connect.mayoclinic.org/discussion/talking-with-your-doctor-about-idiopathic-hypersomnia/

How was your appointment on the 30th?

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@amandajro the neurologist gave me a prescription for Armodafinil but neglected to get pre-approval from my insurance company. So now I’m waiting for the approval so the pharmacy can fill it.
He is starting me on a half dose for the first week. I will let you know how that goes when I get it!

Thanks.

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