Talking Frankly about Living with Advanced Cancer

I don't know if this is helpful, but I simply had my hair shaved off. Seemed less torturose somehow...

I’ve lost over half and is very thin and still falling out everyday.don't know if I’ll lose all or not. This happened after 6 treatments. Hope I’ll look,as good as you do when or if it stops. Meanwhile I’ll keep vacuuming it up.

Thank you!

Hello @jazzjen,

I just noticed that it has been a while since you last posted. I hope you are doing better. How are your lung problems? Any new treatments?

Hello @rochellewisner, I agree with those who say you look good in short hair. It is a great style for you!

I had taxol with carboplatin for my frontline treatment, but I developed PN with the first round so it was quickly modified and then eliminated. With HGSC, I don't know what drugs are used (I have OCCC). Did you have germline testing as well as testing of the tumor? The treatments can be targeted with that knowledge, I believe. By the way, I think your short hair is quite flattering.

After Chemo, my short hair, everyone seemed to like it better! Just being kind I think.
Thank you for the reply.
I’m just trying to find someone who has had the combo Carboplatin and Doxil. Or even a different combination with Carbo. Best of luck to you teal sister. R

Sorry I didn't read your message until today. I've been very busy with family obligations which is a wonderful distraction for me. I, too, was diagnosed with clear cell about two and a half years ago. It is rare and most women you encounter on-line have HGSC. There is a group of women (of all ages with OCCC on Inspire) that is very supportive. I have done a fair amount of research on this particular histology and it is very frequently associated with endometriosis. You are fortunate in having supportive friends and family...it is very helpful. Why are you on oxygen? As for your fear of recurrence, I believe most of the women you will meet in on-line forum will express the same concern. I exercise a lot, do yoga and meditation, and surround myself by nature. And for me, learning about this rare condition has been important.

So glad to hear from you. Although this is difficult, you will be in good hands. I was given carboplatin in my frontline treatment, but I don't know anything about Doxil. Will your husband be with you during this upcoming appointment/surgery? You've described him as so supportive. Do let us know how everything goes for you. Is this a recent photo? You look lovely!

Good luck. Sending positive energy. You got this!!