Tailbone and sacrum pain

Posted by joelhoward1092 @joelhoward1092, Apr 14, 2024

I have also posted questions about ongoing nerve pain after lumbar laminectomy. While the nerve pain is awful, it pales in comparison to the tailbone/sacrum pain I still have 4 weeks post laminectomy of l4-l5 due to spinal stenosis.

My surgeon had felt this would ho away after surgery as he felt it was likely due to inflamed nerves from the stenosis. It was completely gone for 4-5 days post surgery, but about day 6 it, along with other symptoms, started coming back. Although it is not quite as bad as before surgery, it is quite debilitating.

The symptoms range from sharp burning pain and spasms to the left, right and top of my butt crack. I have tried oral steroids, OTC pain relievers, all sorts of stretches and just started PT. None of which seem to be helping at all.

I have seen a pain management doc, who is recommending a caudal injection in the tailbone area. Which made sense at the time and I would have already had it, but my insurance has denied it.

In the meantime my surgeon ordered an MRI of that area. He said the sacrum and coccyx looked ok, but he saw degenerative changes in my SI joint. He is suggesting an SI Joint injection.

I am going to have one of these injections even if I have to pay for them myself (min $2500).

So here are my questions.

1. Has anyone experienced these symptoms before?
2. If so, how was it treated?
3. Has anyone had either of these injections? If so, what were the results?

I really appreciate any input anyone can provide. I am in a lot of pain and confused about my next step.

Thanks in advance!

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@chrisuk

Yes pregab is a controlled drug in uk and has caused many problems for people to include suicide and mental issues.ive been on it many years now and it kills nerve pain and affords me some sleep but it does make me unbothered about things too which is not to good but it got me off fentanyl oramorph and morph tablets so was a blessing for me thankfully!

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Ok I understand completely. When you are in constant pain it’s the end of your world. I feel it. I am glad you have found some relief whatever it takes. I sometimes wish I could take pregabalin , which I did try in a small dose of 25 mg for a few weeks. Unfortunately with osteoporosis it’s a definite no as it worsens bone density so I am unable to take it. I do hope it carries on working for you.

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@tiny28

I have had SI joint nerve pain for three years. Nothing has worked for me. The problem is a hard one to correct. Injecting is not a good option long term. I have osteoporosis now so,operation is out of the question. Trying to live with it is awful. Nerve ablation is Aldo only temporary and doesn’t always work.

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Good day. I have the exact same issue. I have found the diclofenac anti inflammatory and patch to be very helpful. I too have osteoporosis so that is why I use anti inflammatory medications rather than steroids. Diclofenac is a strong anti inflammatory by prescription only. The patches are prescription but I order my from on online pharmacy which has made the process smoother. Best of luck

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