Anyone taking Tagrisso for Lung Cancer?

It was until my last MRI. There’s a tiny - 3mm - bright spot in my cerebellum that may be metastasis. Too small to tell for sure, but suspicious. MRI scheduled for April
Fingers crossed. If it’s my lung cancer, team recommends gamma knife treatment. My concern is that Tagrisso may have stopped working. And if there’s one brain met, might there be more. Haven’t heard from anyone who has had this situation. I was Stage 1b when diagnosed. No sign of mets.

For my situation they just do a CT scan every 3 months. If the cancer is behaving then it is another 3 months. Did a CT or PET show a change in your lung cancer?

My oncologist leads me to believe that if the TAG is keeping the lung cancer under control, then more than likely it would not show elsewhere.

Fingers are crossed for your April MRI.

@tinae, last year, roughly three and a half years after the brain surgery, my doctor detected renewed cancer activity in the area of resection. Last February (2024), I had one more round of targeted radiation, which worked. I'm still cancer-free.

However, roughly 9 months later, I started to have trouble with my right foot wanting to rotate, so I was walking on the outside edge. The following brain MRI revealed necrosis -- cell death. As those cells died, they leaked fluid, which applied pressure to the nerves in the area and a renewal of symptoms similar to what I'd experienced with the cyst: loss of fine motor control in my right arm, general tightness in my right shoulder/back, an inability to lift my right leg, and drop foot on the right side.

I started taking daily Dexamethasone on Dec. 5, 2024, and began getting infusions of Avastin every other week. The Dex has reduced the swelling, and the Avastin has reduced the pooled blood in my brain. I'm still working through the nerve damage and resulting biomechanical dysfunction, i.e., I have problems walking.

Nerves regrow at a rate of 1mm per month, so restoring my walking gait will take some time. I'm working with a personal trainer to train my body to move as efficiently as possible.

Wow!! That is s lot. I am sorry you are going through that. I am glad you remain cancer free. Do you still take the Tagrisso?

It has been working for me as of now. The cancer is behaving.

Have you tried any alternate therapies?

Hi Tinae, I too am taking Tagrisso, I’m also seeing a holistic doctor. She detox me and I am juicing, carrots, ginger, lemon, and celery. Plus, I am taking vitamins. I feel really good. I’m glad you’re doing well too.

I too went to a natural doctor. Working on changing eating habits, and all that good stuff and then I started taking a supplement called my community, which has 17 different mushrooms.

My oncologist made me promise that I wouldn’t spend a lot on anything and I’d give him a copy so I sent him a screenshot as soon as I did that at the pharmacist came back and said I shouldn’t be taking it because it can make your liver enzymes, your blood count, and something else off.

But I can eat the mushroom so I’m eating the mushroom called the Maitake.

There’s some other people that have the same lung cancer I have and they’ve been taking the my community supplement and they have no signs of their cancer but yet my doctor says I can’t take it so I’m going to wait till my next scan and if this is getting worse, I’m going back on that my community.

What’s discouraging is that the oncologist most often go with the western medicine that’s what they know and pharmaceutical companies won’t invest in something cheap like green tea or mushrooms to help the patients. Early at least do some testing to see if there’s something else out there.

We all have to be our own advocate though, and if we feel there’s something that works for us it’s always good to share it with other people in our situations.

We already have cancer how much worse can you get?

Good for you. I’m so happy you’re dealing with a holistic doctor. I was taking my community also too then I found this website this guy Chris Wark had stage three colon cancer. He was in the hospital had surgery. They want him to have chemo and he refused it. He did a lot of researching and all he did was a plant-based diet. The oncologist told him if he didn’t have chemo, he would be dead in six months. That was when he was age 26 now he’s 47. I joined his website once a month he does a video and you can ask him questions and he tells you what’s good to take. What’s not good to take. It’s very interesting. I stopped taking my community because there’s something that’s supposed to be in if that’s not and I forgot what they said, but I found a liquid mushroom. It’s called. CHAGIT mushroom blend. I put 2 teaspoons in my oatmeal. It’s very good. My community doesn’t have a special ingredient in it and I forgot what they said. The guy who created Chagit mushroom blend was on Chris’s video he was saying a lot of great things about it. I also deal with this company called Better Way Health. Chris said beta glucan is a very good vitamin to take it. Builds up the immune system also vitamin D3 and curcumin.

Thanks for the information. I’ll have to look it up.

When I first got diagnosed somebody through my office who knew me had stated that he knew somebody that did the maitake mushrooms and was eating them.

I actually talked to the man turns out he had testicular cancer, which had spread to his lymph nodes and he had 120 hours of infusion but then after that he started eating the mushrooms and it’s been 13 years so just like the man you mentioned his cancer disappeared.

So after being told, I couldn’t take my community I’m back to eating the mushroom. I just need to get it back into my ritual of eating it every day.

Can you share how you found out you had lung cancer?

@babs did your doctor ever tell you you shouldn’t be taking any of that stuff? They tell me that it does something to my liver enzymes and different things in my blood test so that’s why they recommend I don’t take it.

The pharmacist couldn’t come up with a reason why I couldn’t eat the mushroom so that’s why I’m back on those, but I’m pretty sure if I sent him a screenshot of what you’re taking. They’re gonna tell me I shouldn’t. I’m gonna give it a whirl.

Tinae, I don’t think conventional doctors have a clue they’re not trained about nutrition. Or vitamins my doctor checks my liver every six months and thank God I’m doing well. Show him what I’m taking. I guarantee he or she will tell you don’t take it. But I’m so happy you’re doing well.