Anyone taking Tagrisso for Lung Cancer?

@glendap56 the vitamins that I am taking are beta Glucan, a vitamin D3 10,000 units. Magnesium Taurate, CoQ10. Curcumin extra strength. Vitamin K2 MK-7, Tru Niagen, zinc picolinate, Boswellia & flax oil by Barlean’s. I take 2 tablespoon tablespoons after breakfast and 1 tablespoon after dinner. And that’s it.

@kedim I have acquaintances that I still haven't told about my diagnosis! My closest friends and family know. That's it. Enjoy that ice cream and thank you!

@medtech4
Thank you for your frank comments about your journey with this disease. I really appreciate having this Mayo Clinic Connect forum for those with similar health issues so we can share our stories, what is working, what is not, and just to let each other know that "you are not alone." I applaud what you are doing to take care of yourself. I understand some of what you must have experienced when you shared the information with family and friends. I was in such shock that I wanted to tell everyone I met, because I expected them to be in denial and shock as much as I was. That part of my journey is in the past, and now, like you, I'm doing what I can to be as healthy as possible (given the circumstances). Enjoy your treats! They are comforting. The next time I have a little ice cream, I'll raise my dish to you. Salute!

@kedim I understand the shock of the diagnosis! When I was diagnosed with Stage 4 NSCLC, I couldn't believe it! I smoked for 15 years as a teen and young adult and quit in 1990. That diagnosis and all the information that went with it, was ALL I COULD THINK ABOUT (and my own mortality, and how to tell my close family and friends). I had a negative lung biopsy in September 2025 and then another in December 2025 and THAT one was positive. The doctor that performed the biopsy said "he didn't have the right equipment" the first time. I don't know what that means, but I think he should have delayed the first one a few days UNTIL he had the right "equipment", because 3 months later, it had spread to lymph nodes, brain and bone (Skull). I had the one on the skull irradiated NYE 2025 and that shrunk that "bump", which was the only thing giving me pain.

I'm glad that you are grateful and you are making better food choices. I have eaten mostly healthy in my adult life, although I like a little something sweet 4 or 5 days a week at night. It's comforting. Best of luck to you and EVERYONE else who is in this crappy boat!

@lala56 I have been on Tagrisso since January 2026. I had some minor side effects, but not too bad. (a little diarrhea for which I have medication for and some fingertip soreness plus some leg swelling) I was on infusions of Cisplatin and Alimpta for 6 cycles. I was a little nauseaous from the Cisplatin, but not too bad. Now I've been on only Alimpta for 2 cycles. I have 3 more to go! My tumors have shrunk considerably! I'm so glad. The oncologist gave me a BIG hug at the last visit.

I've been on Tagrisso for 8 months now. I'm putting my faith on it to keep me the cancer from returning. So far I've only had minor side effects that are very tolerable . Mostly dry nails and some hair thinning. This forum is great at collecting data from other Tagrisso users. I've read a wide range of experiences. One thing I know its important to drink plenty of water through the day. It seems I have less S/E when I do. Moisturize skin a lot. When my nails are brittle, I wear gloves when washing dishes . Good luck on your treatment. Meditation and exercise to keep your body and mind strong.

Hi, I've been on Tagrisso (80mg) since Dec of 2025. It took me several months to adjust to the drug. At first, I had sores on my tongue, found it not easy to swallow liquids or solids, and had some very dry skin on my fingers, some with deep, deep cracks. Those symptoms have passed. Now I'm feeling pretty normal for a 78-year old. I lost some weight - about 20 lbs or so - and didn't have an appetite. But now, I'm actually hungry! And I'm making a conscious effort to eat healthy food, rather than eat high-calorie, high-fat foods to keep from losing weight.

I think by body has adjusted to the Tagrisso pretty well now, and mentally I have gotten over the shock of being diagnosed with Stage 4 Metastatic NSDLC, never having been a smoker. That was the really hard part for me - the shock of the diagnosis. So as I'm feeling close to normal health, I'm trying to make better food choices and am getting back on the track to regular exercise (visits to the gym and weekly hikes on mountain trails). It's taken several months, for sure. But I've been pacing myself, and I give myself credit for making the choice to get back to a healthy lifestyle.

As far as the weight I lost, I'm glad those pounds are gone. I wanted to lose weight anyway: to get back to a healthier BMI and to better help control my blood pressure. And ... another benefit is that now I can fit again into the clothes I love. I just didn't want to lose weight due to cancer. So, since I'm feeling better - physically and emotionally, I want to take advantage of those positives and enjoy the additional time on this Earth that Tagrisso has given me. I'm grateful for the advances in medical research that have led to this drug and grateful that I live in a time when it's available to patients. Despite the cancer and despite some of the side effects of the drug, I do have a lot to be grateful for.

@158839446 I wish you lots of good luck

@babs1956
Thank you. I’m fighting metastatic lung cancer. Lesions are still healing. I see both cardiologist and oncologist next month and will discuss with them.
Many thanks for sharing.

@158839446 I was on 80 mg of Tagrisso. My body couldn’t handle it so they reduce it to 40 and I’m doing very well on it. Maybe they should reduce yours. Just saying. I wish you the very best.