Tacrolimus: Temporary Cessation

Posted by gaylea1 @gaylea1, Jul 3, 2020

I'm a liver transplsnt patient (post 18 months) I was recently in hospital for an ERCP (bile duct stent removal) and once again got pancreatitis. My liver enzymes were sketchy so the hepatologist stopped my tacrolimus (1mg 2x day). That was on Sunday June 28th. I was released after 8 days which was June 29th and told not to take any tacrolimus until I had blood tests that were ordered for July 2nd. The blood clinics would not do my blood test first tac due to some crazy policy about not taking tests the day after a holiday. In my case July 1st Canada Day. Then they told me (blood lab) that they also won't do the tac test on a Fri – Sun. So now I'm 5 days in with no tacrolimus. I've called my doctors and they finally ok'd .5 mg 2x day. I've been dizzy and a bit confused and my concerns are – did being off the tacrolimus harm me in any way? Has anyone else gone 5 days without it?

@gaylea1, You have been quiet, and I am concerned about you. What is going on? What has your transplant told you or done about your tacrolimus dosage?

REPLY
@rosemarya

@gaylea1, You have been quiet, and I am concerned about you. What is going on? What has your transplant told you or done about your tacrolimus dosage?

Jump to this post

@rosemarya Hello Rosemary. The pancreatitis has settled to less bouts of nausea and no pain. I was given a reduced dosage of tac from 1mg to .5mg. I still feel a bit wobbly and dizzy at times. I have a phone in appointment with my hepatology team this Wed morning. I'll go over my concerns and get their feedback on my last labs. I'm just thankful the stent is out and seems viable. My next few set of labs will either confirm or deny this is the case. The liver function seems to be doing quite well.

REPLY
@gaylea1

@rosemarya Hello Rosemary. The pancreatitis has settled to less bouts of nausea and no pain. I was given a reduced dosage of tac from 1mg to .5mg. I still feel a bit wobbly and dizzy at times. I have a phone in appointment with my hepatology team this Wed morning. I'll go over my concerns and get their feedback on my last labs. I'm just thankful the stent is out and seems viable. My next few set of labs will either confirm or deny this is the case. The liver function seems to be doing quite well.

Jump to this post

@gaylea1, You've had a bumpy journey, so it is especially uplifting to hear that you are progressing in a positive direction. I am happy that your liver function is showing good results. Let us know what you learn about the tacrolimus after you talk to your team.
Hugs.

REPLY
@gaylea1

@rosemarya Hello Rosemary. The pancreatitis has settled to less bouts of nausea and no pain. I was given a reduced dosage of tac from 1mg to .5mg. I still feel a bit wobbly and dizzy at times. I have a phone in appointment with my hepatology team this Wed morning. I'll go over my concerns and get their feedback on my last labs. I'm just thankful the stent is out and seems viable. My next few set of labs will either confirm or deny this is the case. The liver function seems to be doing quite well.

Jump to this post

@gaylea1, I have not seen any posts from you recently. And I am wondering how you are doing? Has the pancreatitis subsided? What about the stenting procedure? Are the followup labs providing any useful information regarding your tacrolimus issues? I (we) would love to hear from you.

REPLY
Please sign in or register to post a reply.