Systemic Lichen Planus - rare, aggressive mucosal variant of LP

Posted by chasity50 @chasity50, 16 hours ago

Hi! I was recently diagnosed with systemic LP. I would love to connect w/ others who are also trying to understand & manage a systemic case of LP. I was perfectly healthy until I had 2 root canals July 2024 & within a few days of the procedure I experience my first oral flare, but didn’t know until a year later that it was OLP. Since July 2025, other flares have rapidly occurred & I am now being treated for LP in my scalp, inflammation in my eye, left ear, oral, esophagus, skin, nails, palm of hands, bottom of my feet & vaginally. My energy level has dropped tremendously & I’ve had to adjust my work hours. I started taking methotrexate yesterday. I would love to know how others w/ this disease are coping.

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kristine31 | @kristine31 | 7 hours ago

I have LP and LS as well as 3 other skin conditions for mine I take Methotrexate for about 7 months now plus folic acid and 3 creams it's a tough skin condition that leaves a person feeling miserable in August I went to ER as I didn't know what else to do. My Dermatologist is fairly new I'm her first case of LS and LP. I have eczema rosacea and morphea as well. So far knock on wood I am not doing to bad with any of them as soon as it itches I use triamcinolone for LP in mouth and body and Momestasone 2 x's a day for LS plus clobetasol only 2x's a week. I have had 3 biopsies as well as the misdiagnosis. Hugs to you and all who suffer from this.