Anyone have input on living with symptoms from cardiomyopathy?

Awesome
I was at gym doing cardio
When I had stents surgery
I went to 3 months of cardio
Rehab
That’s what give me energy
There a saying if they can bottle
Walking everyone be talking 😂
So I do have two things going on
With my heart
Keep fighting
I do need a vacation.
Keep in touch
Let me know your journey.

It is a real struggle. I just do what I can do. I decided to start walking everyday on an indoor track. Even if I can only walk for 10 min it’s better than nothing. I changed my diet, I found that greasy food made it worse. I try and reduce my stress. That’s a hard one but it does help. I am now on medication and honestly it has changed everything. I have now worked my way up to a 5km walk daily

For many, fatigue is definitely a symptom of hypertrophic cardiomyopathy. But it is also present in many other situations as well. September is a long way off...do you have a list of symptoms and questions you are prepared to ask your doctor?

My cardiologist are great I did no talk to doctor
I had stress test in December
Everything same my cardiomyopathy show more
Down at the bottom and they not worried
I having one in September
I trying to figure out my tiredness if it’s from
My allergies to outside.?
I had physical two weeks my oxygen was good
Thanks for responding
Celima

Hi @selima109 ,
This is a great place to be to find out information from others who share your same condition. It sounds like you are active and live a healthy lifestyle by walking and going to the gym and eating well. Do you have hypertrophic cardiomyopathy? Is your doctor aware of your fatigue?

I have cardiomyopathy maybe 3 years ago
I am 72
Last year I had two stents in my heart
1 year. April 2023
I go to gym for cardio
I walk every other day I change diet
I am afraid about not having enough energy
Sometimes
I hope everyone doing well
Celima

Hi Benjamin Hi and welcome to connect, I myself had one of the general conditions that fall under Cardiomyopathy, but I had to look up that other condition. The 2 may be related only that amyloidosis could affect any organ but according to Mayo https://www.mayoclinic.org/diseases-conditions/amyloidosis/symptoms-causes/syc-20353178
it may affect the Heart but I don't believe that having one will mean you can say you have Cardiomyopathy also. Probably best to ask a doctor that question. Have you been Diagnosed with Amyloidosis?

O2 (Oxygen Percent) should be 98% or better. Mine goes up and down, from 50 to 100%. Rather frightening, I believe. oldkarl

What should 02 number be please?

I’m not familiar with this. Have you searched for this here or check Mayo Clinic website or Cleveland Clinic.