Symptoms of non Hodgkin's Lymphoma ?

Lasst year I had 2 iron infusions, which didn't affect me. I just went through 3 iron infusions and about 5 B6 shots, with one more due. No difference in how I feel. This time was a different type of iron since they now think it's my chronic kidney disease Stage 3 that is causing it. Oh, well, I guess we all need to be patient. I haven't had to have chemo or radiation, so I'm thankful for that and feel so badly for all the people I see receiving those treatments--and hoping I won't be joining them. I'll be 79 in Sept and need a total shoulder replacement, along with so many other ailments. I am falling apart one piece at a time to the point I feel I won't have any original parts left. lol

I don't feel any better, but I've been packing when I can since we're moving next Friday (July 11th & 12th). Since I need a total right shoulder replacement, I'm in so much pain I can hardly lift my hand. I actually slept 11 hrs 40 mins the other night, which I don't believe has ever happened to me, and last night slept 10 hr 10 mins. My daughter said I must have needed it. I usually have trouble sleeping because of the pain but I am very glad I was able to sleep. Iron has seemed not to do anything, other than my mouth running a lot this morning and my daughter wondered what was wrong with me! NERVES about the move. I have ADHD and OCD & I'm too sick & tired to get everything done like I used to. If you can't even hook your own bra & have trouble wiping your own behind (my bad arm), you can get depressed. Then just add the "limbo" that we are in with our cancer -- what's happening? I sometimes feel sorry for myself. But, I still enjoy living. We just got a new puppy since I lost my dog of 15 yrs a year ago in April and my daughter lost her dog of 13 1/2 yrs end of Jan. This one is a chocolate mini min-pin who has turned out to be a "fire-cracker!" Not a good idea to get right before a move, but she has brought a lot of joy into this home. My great grandson is 13 and was raised with both dogs and has really gone through depression so it makes me so happy to see him giggling again. I also have a "lizard" friend who visits me daily. When he sees me through the sliding glass door, he comes and sits on the chair and we have conversations. My daughter says I'm the lizard whisperer! I also have a bird who I sometimes whistle to and he answers! lol I'll miss those little guys! Oh, yes, one of my other daughters thought she saw our aligator this morning but it was just a duck! We all have trouble with our vision now. lol

Starting Rituximab infusions in a couple of days for Marginal Zone Lymphoma. I'd like to hear from others who have taken that med.

Do any of you people have CLL? I am also on the wait and see program. First concern was white blood cells but now concern is about lymph counts. I have enlarged lymph nodes in my stomach and groin areas. I am also 75 years old and more tired and aching - do not know if it is age or not

Hi, I am so sorry you're going through this. I just in the process. There's a lymph node that won't go away and is over 2cm. I would like to ask you about the purple spots you mentioned. I have them all over my arms, one quite large. What did they say it is?

I took it for non Hodgkins B Cell Lymphoma. Other than feeling tired …not sure if that wasn’t my emotions catching up…..

Last November, I fell backwards into my wheelchair & hit screws at L5S1. I went to ER & didn't break them but they gave me some meds & sent me home. Several days later, I had spots all around my waist which turned out to be Shingles. I went to walk in and then PCP. After the Shingles healed, I got weird bruises all around waist, under abdomen, and under breasts, & around upper legs, which PCP said was a fungus. No itching, no pain, but kept getting more spots on breasts & then down the back of my legs to my knees and spots under both arm pits. After 4 months I said I needed to find out what it was and went to my Dermatologist. She took a biopsy, I went on a cruise with 2 of my daughters, but didn't want to show any of my skin. Ugh! It took 3 weeks for results--Non-Hodgkins Lymphoma, Mycosis Fungoides. My doctor at Florida Cancer also did the same labs plus more and got the same result. I was supposed to start light treatment and went 3 times, but they never started it. The last time I was told my case was too complicated and they sent my records to Moffit. My daughter took me to Moffit and they did labs, but while I was there, I was told I was in complete remission since the color of this "rash" wasn't purple and red, but most had turned light brown. How could I be in remission without treatment? My PCP said there are miracles. Othere doctors said going into remission like that can happen. I was told to contact them if I saw a purple/red spot. They repeated the labs I already had twice and on one test they did twice--Flow Cytometry--one was positive and the other was negative. My oncologist is playing a wait and see but told me I must continue with dermatologists, who basically gave up on me. I will see dermatologist in 2 days and see what she says. In the meantime, it's iron infusions, B12 shots, labs and appts, and in November they will do the same testing that's been done 3 times. Hopefully I won't have to have another bone marrow biopsy. Originally, I was seeing oncologist for suspected Multiple Myeloma, not lymphoma. I'm at MGUS, which means I may never get full blown MM, but this is driving me crazy. Tell me what I have & I deal with it--but this unknown--with 2 cancers is driving me nuts, especially since I already have so many other health problems. I'm waiting to get a shoulder replacement surgery, which has been delayed since July 31 because my PCP stopped taking my insurance and no one told me. Sorry for the long way to get to your question, but I would suspect the purple spot on your arm might be the beginning of non-Hodgkins Lymphoma--Mycosis Fungoides--which I may or "may not" have. lol I feel so bad for all of us going through this, but I'm now 79, and at least the knowledge about cancer has grown by leaps and bounds in my lifetime, and friends that died in their teens would have survived now. That gives me hope. I also have a bunch of auto-immune diseases, a pacemaer, had a heart attack and 2 strokes, 30+ surgeries, etc. I could go on and on with health problems, but for some reason, I'm still here. I thank God every day for still being here, even in so much pain because I still enjoy life. I had 2 grandsons and 1 great grandson here playing in the pool yesterday and it was so nice. This morning my daughter told me to look at the beautiful white heron and another bird that looks like a chicken. Later, we had a hawk sitting on the pool cover. We don't have a lot of money, but we recently moved to a house with a pool (renting) for our health. I have a hospital home-bound great grandson here and 2 of my daughters, and we all have health problems. I can't get into pool or hot tub without rails and we're waiting on landlord for that. He didn't want us doing it. Anyway, The beauty around me and family keep me going. I have 18 grandchildren and great grandchildren, which is a blessing, but they are rather scattered now from WA state to FL to MA and to the Philippines. Just wish I could visit like I used to. My ADHD mind had gone wild. You will probably never ask another question!

Thank you so much for your response. It helps. I have a lymph node in my groin area that just won't go away. It's very painful at times. I'm guessing it became reactive when my appendix burst. I was released from the hospital still septic. I'm still waiting to see a cardiologist and surgeon and more tests.
I'm so glad to hear you have family around you. I've been alone through this. Nice to share with someone. Thank you 😊🙏

I was an only child and was very lonely. We also moved a lot. When we stayed in an area for awhile, I did get friends. I think the loneliness is what drove me to have 5 kids plus the fact that I loved children. Although I have a great big family, they are very scattered but that's why I love the fact I do live with family. However, sometimes it's a double edged sword. Even with my kids in their late 40s & 50s, there is sibling rivalry. lol Also, sometimes we don't see eye to eye, but we resolve issues. If you don't have family, it might be good to find a support group that you could go to in person or a senior center. I don't have any close friends since we moved here 2 years ago because I'm mainly home or at doctor's appointments, so my kids have taken that place. However, what helps me most is my faith. No matter what I'm going through, I know there is a light at the end of the tunnel. Things will eventually get better and I have a hope for the future. In the Lord's Prayer, we pray for god's will to be on earth and at Ps 37:10 & 11 it says "Just a little while longer, and the wicked will be no more; you will look at where they were, and they will not be there. But the meek will possess the earth, and they will find equisite delight in the abundance of peace." This gives me strength and helps me deal with my problems. I am not a patient person, but dealing with these health problems has given me patience. I've always wanted to fix things immediately, but with these crazy cancers, that doesn't happen. I would suggest to keep going to your doctors and ask them all the questions you have. My oncologist is very patient and kind and good at answering my questions, so I'm fortunate. I wish you well.