MGUS Symptoms: What symptoms did you experience?

Posted by scnana @scnana, Jan 29 9:20am

I had extensive bloodwork with a hematologist in December 2023 resulting in dual diagnoses in MyChart of thrombocytopenia and MGUS. Because of timing issues my follow up is scheduled for 2/27/2024. Anyone else plagued with overwhelming fatigue? For example, today I got up around 7:30am. I’ve felt like I need a nap since around 9:30. I’ve done some research about MGUS. Some information has been helpful, I think. Some is contradictory. What should my expectations be from my body?

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@rlhare when they found the M protein in my blood doing routine blood test for something totally unrelated, my white count shot up sky high. Anxiety will do a number on you. I’m glad that your appointment is not too far in the future.

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I was diagnosed with MGUS after having severe back pain from a thoracic vertebral compression fracture and having tender spots over various bones. My light chain ratio is low. My Dexa Scan shows mild osteopenia, not osteoporosis. I have no osseous lesions on MRI. The radiologist said the rest of my vertebrae looked like someone much less than my age, which is 74. This is not a common presentation of MGUS. The compression fracture is worrisome. Anyone else experiencing vertebrae fractures in light of MGUS?

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