Swelling and stiffness, 3 years after total knee replacement

Posted by bengalady @bengalady, Oct 9, 2019

I had knee replacement 3 years ago. It is worse than previous knee pain, and getting worse as more time goes by. My surgeon (in another state) says everything normal based on X-ray. Ortho doc here says the same, and said I’m having pain and he referred me to pain clinic for possible nerve block. I want to know WHY am I having pain, although I didn’t call it pain. ROM is 100. They can’t see everything on X-ray. I want an MRI. Want to go for second opinion. Should I tell new doc I’m there for second opinion, I don’t think that’s necessary……I think that would cause some bias, ie they would just say same thing.
Has this happened to anyone ? Thoughts ?
TIA

@bengalady

Thank you for all this information. I don’t know that I’m allergic to any metals, just that I have food sensitivities galore, and not much I can eat. So, what will you do ? I haven’t been able to kneel for many many years now, both knees with and without implant. Ortho said I’m bone on bone, so I need replacement on my other knee now, and naturally I’m scared. I had a couple of injections which helped. Apparently not suppose to do long term. I went to a seminar, and they said if one is bone on bone, stem cell would not work. On research, I did find out that my knee brand was recalled. The Dupuy.

Jump to this post

My issue is also bone on bone, but not as advanced as yours. With technique, even though painful I can still get up and do so throughout the day. What were your injections? Over the years I have had steroids and the equivalent of rooster comb injections.Maybe they helped, certainly nothing dramatic. Another good morsel from you-"if bone on bone, stem cell would not work". I am still curious and will look up the Dupuy.

REPLY

i am bone on bone, did the stem cells but found PRP to be the most effective. I to did the rooster comb shot.

REPLY
@bengalady

Thank you for all this information. I don’t know that I’m allergic to any metals, just that I have food sensitivities galore, and not much I can eat. So, what will you do ? I haven’t been able to kneel for many many years now, both knees with and without implant. Ortho said I’m bone on bone, so I need replacement on my other knee now, and naturally I’m scared. I had a couple of injections which helped. Apparently not suppose to do long term. I went to a seminar, and they said if one is bone on bone, stem cell would not work. On research, I did find out that my knee brand was recalled. The Dupuy.

Jump to this post

Have you had testing for food sensitivities? I used the Groupon coupon for the food sensitives test in which you send off a few hair samples for analysis. "Check My Body Health", based in England. They say it is not a dna test, but not sure what they do to test the hair. Takes 3 weeks for results. Some of the foods tested are strictly English, most Americans have never eaten Goose or Spelt. I got the middle priced test for only $35.00 which tested hundreds of foods. Truly more information than I wanted to know as now I have dozens more foods to avoid. Some I could guess for years, as I would feel icky/a bit queasy after I ate or had gas and bloating, for example more than a few ounces of milk gave me symptoms and the same with cashews in which I feel like I ate junk food afterward and yes dairy and cashews were identified as sensitivities, but plenty of others showed up which never occurred to me. For example why should I avoid turkey and lamb, but chicken and beef are safe? This test tests for at least 5 different types of apples and showed I was sensitive to all of them. I now only eat a few pieces of fruit a week because of the anti-inflammation diet I am on which avoids sugar, yes even natural, but I have never felt bad after eating an apple. I have heard apples, unlike pears contain a certain ingredient which many are sensitive to. So now I buy pears. Pears are the first fruit recommended for babies and now as I senior I feel I am having to eat baby food again. For example white rice is safe but results show brown rice isn't. I feel fine eating turkey or lamb or apples, yet am paying attention now to any sensitivity which showed up as severe, as the sensitivity is on a rating scale. This test is for food sensitivities, not allergies. One interesting confirmation of the validity of this test was the part where they check for sensitivities other than foods, like bee or wasp stings. I do know I have a bee sting allergy, no testing needed as I have had reactions. This test showed I am sensitive to bee sting, but not wasp. When filling out the questionnaire I made of point of not giving them any clues as to my history.

REPLY
@bengalady

Thank you for all this information. I don’t know that I’m allergic to any metals, just that I have food sensitivities galore, and not much I can eat. So, what will you do ? I haven’t been able to kneel for many many years now, both knees with and without implant. Ortho said I’m bone on bone, so I need replacement on my other knee now, and naturally I’m scared. I had a couple of injections which helped. Apparently not suppose to do long term. I went to a seminar, and they said if one is bone on bone, stem cell would not work. On research, I did find out that my knee brand was recalled. The Dupuy.

Jump to this post

The only thing I can think of when the day comes and I can't get back up is to stop kneeling! Get cleaning and gardening help. I used to laugh at the "Help I've Fallen and I can't get up" Life Alert ads; if one is living alone that would be an option if one falls. Aging does teach us humility and sympathy for others. Right now I can manage and am married, but like you the fear of loosing my independence can cross my mind. Yet I have learned not to worry about something I can't control. I am almost 71, have survived leukemia- it's gone, manage another autoimmune disease and figure I will simply handle that issue when the time comes.

REPLY
@gardeningjunkie

Have you had testing for food sensitivities? I used the Groupon coupon for the food sensitives test in which you send off a few hair samples for analysis. "Check My Body Health", based in England. They say it is not a dna test, but not sure what they do to test the hair. Takes 3 weeks for results. Some of the foods tested are strictly English, most Americans have never eaten Goose or Spelt. I got the middle priced test for only $35.00 which tested hundreds of foods. Truly more information than I wanted to know as now I have dozens more foods to avoid. Some I could guess for years, as I would feel icky/a bit queasy after I ate or had gas and bloating, for example more than a few ounces of milk gave me symptoms and the same with cashews in which I feel like I ate junk food afterward and yes dairy and cashews were identified as sensitivities, but plenty of others showed up which never occurred to me. For example why should I avoid turkey and lamb, but chicken and beef are safe? This test tests for at least 5 different types of apples and showed I was sensitive to all of them. I now only eat a few pieces of fruit a week because of the anti-inflammation diet I am on which avoids sugar, yes even natural, but I have never felt bad after eating an apple. I have heard apples, unlike pears contain a certain ingredient which many are sensitive to. So now I buy pears. Pears are the first fruit recommended for babies and now as I senior I feel I am having to eat baby food again. For example white rice is safe but results show brown rice isn't. I feel fine eating turkey or lamb or apples, yet am paying attention now to any sensitivity which showed up as severe, as the sensitivity is on a rating scale. This test is for food sensitivities, not allergies. One interesting confirmation of the validity of this test was the part where they check for sensitivities other than foods, like bee or wasp stings. I do know I have a bee sting allergy, no testing needed as I have had reactions. This test showed I am sensitive to bee sting, but not wasp. When filling out the questionnaire I made of point of not giving them any clues as to my history.

Jump to this post

I can look into that. I've been keeping a food diary, and symptoms. Doc wants me on Keto Diet, Low Fodmap, gluten free, no dairy……well, not much I can eat.

REPLY

Well, went to the pain doctor today. He said something about "Complex Regional Pain Syndrome" I think that's the term they use, when they can't figure it out ? Gave me Tylenol #3, and Gabapentin for now. He mentioned the Norco, but I said no. He ordered a bone scan. He also asked me what my Ortho doc said, or did he order an MRI. I said no, ect. He said I need another Orthopedic Doctor, he will give me a referral. I just want to get to the bottom of this. This is especially why I don't want the other knee done, I'm too scared of being incapacitated. I haven't been able to kneel for many years now. My cat knows that, so he goes under the bed when I want him, or am mad about something. If I ever got down on the ground somehow, no, I wouldn't be able to get up. I live alone, worry about that sometimes. It would be so nice to take a nice hot bath !!!

REPLY
@bengalady

Well, went to the pain doctor today. He said something about "Complex Regional Pain Syndrome" I think that's the term they use, when they can't figure it out ? Gave me Tylenol #3, and Gabapentin for now. He mentioned the Norco, but I said no. He ordered a bone scan. He also asked me what my Ortho doc said, or did he order an MRI. I said no, ect. He said I need another Orthopedic Doctor, he will give me a referral. I just want to get to the bottom of this. This is especially why I don't want the other knee done, I'm too scared of being incapacitated. I haven't been able to kneel for many years now. My cat knows that, so he goes under the bed when I want him, or am mad about something. If I ever got down on the ground somehow, no, I wouldn't be able to get up. I live alone, worry about that sometimes. It would be so nice to take a nice hot bath !!!

Jump to this post

You are preparing me for my future. Your cat sounds very smart! Have you considered the Life Alert they advertise on TV in case you fall and can't get up. I believe it is worn on a cord. I wonder if a government program supports assistance in paying for this if needed. My grandmother fell in her shower and although my father called her every evening because of her age and living alone, she had to lay on the shower floor overnight with water running by then cold until the next evening when he called. When she didn't pick up he had a 30 minute drive to check on her. Poor dear Mimi. Her issue was different, she fell because of osteoporosis, her hip joint just gave way.

REPLY
@gardeningjunkie

You are preparing me for my future. Your cat sounds very smart! Have you considered the Life Alert they advertise on TV in case you fall and can't get up. I believe it is worn on a cord. I wonder if a government program supports assistance in paying for this if needed. My grandmother fell in her shower and although my father called her every evening because of her age and living alone, she had to lay on the shower floor overnight with water running by then cold until the next evening when he called. When she didn't pick up he had a 30 minute drive to check on her. Poor dear Mimi. Her issue was different, she fell because of osteoporosis, her hip joint just gave way.

Jump to this post

Yes, I think I’m going to look into that. I try to have my phone with me at all times, but sometimes I don’t. My father had similar situation, but I guess I should be thankful, he waited three hours before I got there when he didn’t answer the phone.
They have a service in my community where I would call them everyday, and if I don’t, they’d call me/check on me. My son (lives in another state), said, knowing me, I’d forget to call, lol.

REPLY
@gardeningjunkie

You are preparing me for my future. Your cat sounds very smart! Have you considered the Life Alert they advertise on TV in case you fall and can't get up. I believe it is worn on a cord. I wonder if a government program supports assistance in paying for this if needed. My grandmother fell in her shower and although my father called her every evening because of her age and living alone, she had to lay on the shower floor overnight with water running by then cold until the next evening when he called. When she didn't pick up he had a 30 minute drive to check on her. Poor dear Mimi. Her issue was different, she fell because of osteoporosis, her hip joint just gave way.

Jump to this post

@gardeningjunkie your poor grandmother. I don’t people realize just how serious osteoporosis is unless they have been confronted with it. Now that I know that I have it, I am quite concerned about falling.

@bengalady that’s a really great service to have. I knew a woman whose father had apparently been dead for two weeks in his home before anyone realized it. Shame on her for not being more in touch with her father.

I hope you do get to another orthopedic surgeon for another opinion. I just do not think a person should have to endure such pain following a surgery that is supposed to help. There has to be a cause, and when that cause is finally discovered, hopefully a fix.
JK

REPLY
@cobweb

i am bone on bone, did the stem cells but found PRP to be the most effective. I to did the rooster comb shot.

Jump to this post

What does PRP stand for?

REPLY
In reply to @msstoppainnagginme "What does PRP stand for?" + (show)
@msstoppainnagginme

What does PRP stand for?

Jump to this post

@msstoppainnagginme PRP is Plate Rich Plasma, an injection. More info here:
https://www.healthline.com/health/prp
I personally know nothing about it, I have had two TKRs. Are you considering a TKR or something else for knee arthritis? I have been very happy with my TKRs, particularly with the second one which was done with a Conformis knee. From what I hear the robotic method, MAKOplasty, is extremely successful also. Stem cell therapy and PRP are not generally covered by insurance.
JK

REPLY
@contentandwell

@msstoppainnagginme PRP is Plate Rich Plasma, an injection. More info here:
https://www.healthline.com/health/prp
I personally know nothing about it, I have had two TKRs. Are you considering a TKR or something else for knee arthritis? I have been very happy with my TKRs, particularly with the second one which was done with a Conformis knee. From what I hear the robotic method, MAKOplasty, is extremely successful also. Stem cell therapy and PRP are not generally covered by insurance.
JK

Jump to this post

Thank you for this information. I looked up on the Conformis, and found a doctor in my area. Maybe he can see about what’s wrong with my current TKR. I’m thinking about stem cells, but although I know nothing is ever guaranteed, I’d hate to spend that money and have it not work.

REPLY

Hi. I have had a similar problem with my knee re-replacent. I was 5 or 6 weeks out of surgery when i stumbled on uneven concrete. From then on I have had pain and swelling. X-ray shows no damage but Dr. Is sending me for an MRI. I think I may have messed up my knee all on my own. I would definitely ask for an MRI

REPLY
@JustinMcClanahan

Hello @bengalady. Is your ROM hindered by scar tissue? Has that been discussed as a possible reason for your ROM only being 100 and possibly as well as your pain? You may find this conversation worth your time to read through and participate in as well, https://connect.mayoclinic.org/discussion/scar-tissue-after-knee-replacement/.

Jump to this post

Just joined and looking for help. Had tkr in May ‘19 and the outside of knee is constant pain. PT says it’s my IT band. I’ve actually lost mobility since returning to work. Pain lasts all day and wakes me up every night. It’s honestly getting old. I’ve heard you can surgically repair the IT band and wondering if anyone has had it done. Looking for the silver bullet. Any and all help is appreciated. Thanks in advance.

REPLY
@dmr1271

Just joined and looking for help. Had tkr in May ‘19 and the outside of knee is constant pain. PT says it’s my IT band. I’ve actually lost mobility since returning to work. Pain lasts all day and wakes me up every night. It’s honestly getting old. I’ve heard you can surgically repair the IT band and wondering if anyone has had it done. Looking for the silver bullet. Any and all help is appreciated. Thanks in advance.

Jump to this post

Hi @jwademan and @dmr1271, welcome to Connect.

@dmr1271, there is another discussion in Joint Replacements you may find very helpful to read through and participate in. It focuses on IT band issues after knee replacements and is titled, "IT band syndrome after knee replacement." You can find that here, https://connect.mayoclinic.org/discussion/it-band-syndrome-after-knee-replacement/.

@jwademan, if you are comfortable sharing, is your MRI soon? How long ago was your fall? Did you land on your knee?

REPLY
Please login or register to post a reply.