1. < Pancreatic Cancer

Surgery locations

Posted by skiball @skiball, Mar 27, 2023

As long as it does not violate any privacy concerns, and certainly up to the individual who is posting, I would like to know where surgeries have been done, would they recommend a certain hospital/doctor/method of procedure.
Thank you!

Interested in more discussions like this? Go to the Pancreatic Cancer Support Group.

stageivsurvivor | @stageivsurvivor | Mar 30, 2023

For patients in the USA, the Pancreatic Cancer Action Network PanCan.org) maintains a database of NCI designated centers of excellence in cancer treatment with a pancreas center or Hepatobiliary program. The organization also maintains a list of surgical oncologists who specialize in. Doing the Whipple procedure and distal pancreatectomy as well as those with the additional skills of vascular surgery should vascular involvement become an issue.

The Patient Central group of PanCan.org has case managers that can provide a list of specialized centers in pancreatic cancer and highly experienced surgical oncologists who have performed hundreds to thousands of pancreas surgeries in their career. They can be reached at 877.272.6226, M-F, 7:00am-5:00pm PT.

REPLY
1 reply
skiball | @skiball | Mar 30, 2023
In reply to @stageivsurvivor "For patients in the USA, the Pancreatic Cancer Action Network PanCan.org) maintains a database of NCI..." + (show)
@stageivsurvivor

For patients in the USA, the Pancreatic Cancer Action Network PanCan.org) maintains a database of NCI designated centers of excellence in cancer treatment with a pancreas center or Hepatobiliary program. The organization also maintains a list of surgical oncologists who specialize in. Doing the Whipple procedure and distal pancreatectomy as well as those with the additional skills of vascular surgery should vascular involvement become an issue.

The Patient Central group of PanCan.org has case managers that can provide a list of specialized centers in pancreatic cancer and highly experienced surgical oncologists who have performed hundreds to thousands of pancreas surgeries in their career. They can be reached at 877.272.6226, M-F, 7:00am-5:00pm PT.

Jump to this post

This is so helpful! Thank you.

REPLY
gamaryanne | @gamaryanne | Mar 30, 2023
In reply to @skiball "What protocal are you following? Did you have any kind of procedure?" + (show)
@skiball

What protocal are you following? Did you have any kind of procedure?

Jump to this post

Yes. Chemotherapy until tumors shrunk (14rounds). Liver tumors shrunk together so could be embolized. Months later had a pancreadectomy (via lap). Last month had liver and gall bladder ressected .

I am NED for now and CA 19-9 has gone down. Yesterday agreed to do the Signatere testing.

REPLY
1 reply
skiball | @skiball | Mar 30, 2023
In reply to @gamaryanne "Yes. Chemotherapy until tumors shrunk (14rounds). Liver tumors shrunk together so could be embolized. Months later..." + (show)
@gamaryanne

Yes. Chemotherapy until tumors shrunk (14rounds). Liver tumors shrunk together so could be embolized. Months later had a pancreadectomy (via lap). Last month had liver and gall bladder ressected .

I am NED for now and CA 19-9 has gone down. Yesterday agreed to do the Signatere testing.

Jump to this post

Thanks for your info. I had to look up NED, that's good news and that your CA1-99 is going down. Not sure what Signatere testing is. I wish you a continued promising outlook.

REPLY
View MoreView Less
Please sign in or register to post a reply.