1. < Neuroendocrine Tumors (NETs)
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surgeons who can opeate on mesentery

Posted by panorman3 @panorman3, 4 days ago

Some one sent me a name of a surgeon in Louisiana and i have misplaced it. Looking for a surgeon who can remove the carcinoid tumor in the mesentery.

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

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taly | @taly | 22 hours ago
In reply to @tomrennie "@taly It can be a rollercoaster of emotions. I can relate to that. Hearing the diagnosis..." + (show)
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@taly It can be a rollercoaster of emotions. I can relate to that. Hearing the diagnosis is definitely a gut punch. It takes your breath away. You just have to take the process one step at a time. It is great to do research. Education about the disease is important. Please make sure that your research is with reputable sources. There is a lot of misinformation out there. This is all stressful enough. Adding additional stress by considering incorrect information isn't helpful. I know from experience. I was diagnosed in 8/22. I have been at this for four years. I was very sick, when I got diagnosed. I am doing great now compared to then. Did you have a biopsy that diagnosed your NET? How did you learn that you had a grade 1? Thanks.

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@tomrennie Thanks. Yes, my research is usually through Mayo or PubMed, etc.

I did have a biopsy. Came up well differentiated, Ki-67 <3%, Grade 1. Of course we know Grade 1 does not equal Stage 1. So that is yet to be seen. I'm so glad you're doing much better. I've been having GI symptoms, which prompted the colonoscopy that found the SBNET, but not seriously ill. It's possible my tumor is functioning, though. I'm getting a cardiac workup to see if my heart has been affected.

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Mercy | @rogerstc | 22 hours ago
In reply to @tomrennie "@rogerstc That is awesome that the surgery went well. You have to feel really good about..." + (show)
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@rogerstc That is awesome that the surgery went well. You have to feel really good about your decision to move forward with it? What did Dr. Younan share with you that gave you the confidence to have the surgery, when other doctors were apprehensive?

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@tomrennie Hi Tom, I am so grateful to God for placing Dr. Younan in my path. My ongologist referred me to him. The other doctor was a general surgeon and did not have the specialize experience as Dr Younan. Dr. Younan is an oncologist surgeon who specializes in complex abdominal surgeries, to include whipples. He's accustom to operating in the mesentery area.

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Turkey, Volunteer Mentor | @tomrennie | 18 hours ago
In reply to @taly "@tomrennie Thanks. Yes, my research is usually through Mayo or PubMed, etc. I did have a..." + (show)
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@tomrennie Thanks. Yes, my research is usually through Mayo or PubMed, etc.

I did have a biopsy. Came up well differentiated, Ki-67 <3%, Grade 1. Of course we know Grade 1 does not equal Stage 1. So that is yet to be seen. I'm so glad you're doing much better. I've been having GI symptoms, which prompted the colonoscopy that found the SBNET, but not seriously ill. It's possible my tumor is functioning, though. I'm getting a cardiac workup to see if my heart has been affected.

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@taly Another good good resource is the Neuroendocrine Cancer Foundation. Here is the link to their website: https://www.ncf.net/

Your Ki-67 of <3% is good. You are correct though. A Grade 1 doesn't equal a stage one. Kudos to you for addressing your GI issues as quickly as you did. I agree that your symptoms may be a clue that your tumor is functional. It is good to play it safe with a cardiac workup. I just had one myself. It is precautionary as a long term chemo patient. The scan will help determine your next steps. I hope it confirms what you already know and nothing else. Scanxiety is real, when waiting for the results. Have you signed up to the Mayo Clinic patient portal yet?

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Turkey, Volunteer Mentor | @tomrennie | 17 hours ago
In reply to @rogerstc "@tomrennie Hi Tom, I am so grateful to God for placing Dr. Younan in my path...." + (show)
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@tomrennie Hi Tom, I am so grateful to God for placing Dr. Younan in my path. My ongologist referred me to him. The other doctor was a general surgeon and did not have the specialize experience as Dr Younan. Dr. Younan is an oncologist surgeon who specializes in complex abdominal surgeries, to include whipples. He's accustom to operating in the mesentery area.

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@rogerstc Good for you for advocating for yourself. You found a surgical specialist that could address your needs. And, he addressed them with positive results. That's fantastic. Congrats to you.

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