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surgeons who can opeate on mesentery
Neuroendocrine Tumors (NETs) | Last Active: 4 hours ago | Replies (25)Comment receiving replies
@tomrennie Thanks. Yes, my research is usually through Mayo or PubMed, etc.
I did have a biopsy. Came up well differentiated, Ki-67 <3%, Grade 1. Of course we know Grade 1 does not equal Stage 1. So that is yet to be seen. I'm so glad you're doing much better. I've been having GI symptoms, which prompted the colonoscopy that found the SBNET, but not seriously ill. It's possible my tumor is functioning, though. I'm getting a cardiac workup to see if my heart has been affected.
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@taly Another good good resource is the Neuroendocrine Cancer Foundation. Here is the link to their website: https://www.ncf.net/
Your Ki-67 of <3% is good. You are correct though. A Grade 1 doesn't equal a stage one. Kudos to you for addressing your GI issues as quickly as you did. I agree that your symptoms may be a clue that your tumor is functional. It is good to play it safe with a cardiac workup. I just had one myself. It is precautionary as a long term chemo patient. The scan will help determine your next steps. I hope it confirms what you already know and nothing else. Scanxiety is real, when waiting for the results. Have you signed up to the Mayo Clinic patient portal yet?