Supplement recommendations: What can help neuropathy?

Posted by newzbug @newzbug, Nov 15, 2019

I was diagnosed earlier this year with “Sensorimotor Peripheral Neuropathy” over my whole body, though I am not yet showing symptoms everywhere. I do have numbness in all my toes, feet, a large section of my upper right thigh, large section of the side of my left calf, occasional … numbness in my hands in the middle of the night. Anyway, my neurologist did suggest Alpha Lipoic Acid (otc supplement) to help with the neuropathy. She said that although studies suggest people who also have diabetes have had some success with taking this (I don’t have diabetes), she said I might get some help from it. So, yep, it’s been about 8 months I have been taking 600mg/daily and it seems to have helped lessen my feelings of ‘burning feet’. I am going to increase my dosage to 800mg when I finish my current bottle. I use a brand that has no additives (colors, flavors, etc). Brand: Best Vitamins. Though I don’t have diabetes, and it may be helpful only because I believe in it, that is something.

My husband periodically gives me massage on my ankles, tops of my feet and calves which seems to offer some help with the emptiness feeling on that lower part of my body. I am doing some reading research on any other supplements which could be of help. I try not to think about neuropathy too much, because I have since been diagnosed with Pulmonary Hypertension and CTEPH. I stick to reputable sites like the Mayo Clinic and PubMed as well as those of us who have personal experiences. Thanks to everyone here for your help. Maybe someday there will be a definitive cure for this wicked torture.

@ruthofanne Im so glad yot got relieve like all creams it only last so long I love it

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@jesfactsmon

My wife ordered 2 old goats from amazon back in 2015. She said at the time that it gave her some relief to her PN but not that much. She only ordered it once, if that tells you anything. It's got a cute name though. We both take 300mg of Life Extension RALA daily. We take so many supplement neither of us has a clue whether it's working or what it's doing if it is. So many people say to take it though that we do. And it's supposed to work synergystically with acetyl l carnitine which we both take as well. It's hard to know whether supplements are really helping a lot of times. It seems to not be hurting anything as far as we can tell, other than our pocketbook.😉 It's definitely not cheap.

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I've had great results from taking 600mg of benfetomine. One time in the morning try it you'll like it!

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@captphilly777

I've had great results from taking 600mg of benfetomine. One time in the morning try it you'll like it!

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Hello @captphilly777, Welcome to Mayo Clinic Connect. Thanks for sharing what helps you. Are you able to share a little more about your diagnosis or tests you've had?

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@johnbishop

Hello @captphilly777, Welcome to Mayo Clinic Connect. Thanks for sharing what helps you. Are you able to share a little more about your diagnosis or tests you've had?

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Sure any way I can help anyone I will

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wil the ALA mix with other drugs as I take alot already .I am not diabetic but my feet are going wild .thanks guys

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@captphilly777

I've had great results from taking 600mg of benfetomine. One time in the morning try it you'll like it!

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@captphilly777 National Institute of Health has been running a long clinical trial on benfetomine as it relates to Alzheimer's..The study finishes in June 2021..

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@johnbishop

Hello @robtlhughes, You will notice we moved your post to an existing discussion on supplements in the Neuropathy group. If you click the VIEW & REPLY button it will take you to this reply to your post in the discussion Supplement recommendations: What can help neuropathy?.

I take active form of Alpha Lipoic Acid (R-ALA) as I'm sure others also take to help with their neuropathy. I have never tried Two Old Goats products but I have my doubts since what I get from reading their website is they are a proprietary blend of several different essential oils. I tried mixing my own essential oils early on in my experimenting to see if it would help me and I didn't find that it gave my numbness any relief. It may help for pain but I would have to leave that for someone else to share their experience. You might want to read my post above which talks about the 2 versions of Alpha Lipoic Acid (S-ALA and R-ALA). Here is a link to the post – https://connect.mayoclinic.org/discussion/supplement-recommendations-can-help/?pg=1#comment-346329

Here's another list that you may find helpful from Medical News Today – Which supplements can help with neuropathy?: https://www.medicalnewstoday.com/articles/326917

You might also be interested in joining in the following discussion and learning what other have shared…
Small Fiber Neuropathy burning?: https://connect.mayoclinic.org/discussion/small-fiber-neuropathy-burning/

@rwinney @jesfactsmon @katec and other members may have some suggestions to share with you on the burning symptom.

Do you use any kind of lotion on your legs at night now?

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Hello @robtlhughes, John and others, my Neurologist told me to use the S and R Alpha Lipoic Acid. I found,"Simply Nature's Pure" brand that has both the R and S types in it, on Amazon. I can't really tell if it's working since I have so many types of pain including a variety of burning and stinging pain. I think it's working some. I take 600 mg. daily.

Warmest wishes, Sunnyflower

Liked by Hank

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@sunnyflower

Hello @robtlhughes, John and others, my Neurologist told me to use the S and R Alpha Lipoic Acid. I found,"Simply Nature's Pure" brand that has both the R and S types in it, on Amazon. I can't really tell if it's working since I have so many types of pain including a variety of burning and stinging pain. I think it's working some. I take 600 mg. daily.

Warmest wishes, Sunnyflower

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Here's something that I will recommend to you I don't see a lot of it recommended on the internet but it works excellent for me. Go on Amazon and by a good quality Benfotiamine I use a product by Carlisle. Take 600 mg a day at the same time. This has helped my neuropathy in my toes and feet over the last many years. You should have some relief within a day or so but keep taking it let me know how you do if it works pass it on

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@ken82

@captphilly777 National Institute of Health has been running a long clinical trial on benfetomine as it relates to Alzheimer's..The study finishes in June 2021..

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Thank you for that valuable information. I will be interested to see how that works out. I know that they have been coupling benfotiamine with vitamin B12 and rather large doses generally in Europe and have had some pretty good success. A number of years ago I was suffering in my toes in the bottom of my feet behind my toes my brother told me one of the stewardesses on his plane had a problem with it also she used benfotiamine and if she skipped those she really felt it he suggested I try it. I did and I have been on it ever since. Pass on the good word I believe it works! God bless and peace to everyone

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@razzle50

wil the ALA mix with other drugs as I take alot already .I am not diabetic but my feet are going wild .thanks guys

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Try 600 mg a day in the morning of benfotiamine. It works for me

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@sunnyflower

Hello @robtlhughes, John and others, my Neurologist told me to use the S and R Alpha Lipoic Acid. I found,"Simply Nature's Pure" brand that has both the R and S types in it, on Amazon. I can't really tell if it's working since I have so many types of pain including a variety of burning and stinging pain. I think it's working some. I take 600 mg. daily.

Warmest wishes, Sunnyflower

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@sunnyflower hi Sunny. Can you send the link to the ALA you buy on Amazon via private message? I am starting Cymbalta today to see if that helps with my neuropathy. Keep your fingers crossed!

Liked by Hank

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Thank you! I will definitely try this supplement. What about B vitamins? Any thought?

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@bustrbrwn22

@sunnyflower hi Sunny. Can you send the link to the ALA you buy on Amazon via private message? I am starting Cymbalta today to see if that helps with my neuropathy. Keep your fingers crossed!

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Hi Bstrbrwn, FYI – some of us use stabilized RAla, which is somewhat more costly but supposedly more bioavailable, not the combo, both of which are sold on Amazon. (I originally took the combo and changed over noting a difference in efficacy) I take 300 mg. 3xday and it helps alleviate any pain for me. Helen

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@hopalongnm3 Beware of too much B6… However, too much vitamin B-6 also can cause:
A lack of muscle control or coordination of voluntary movements (ataxia)
Painful, disfiguring skin lesions.
Gastrointestinal symptoms, such as heartburn and nausea.
Sensitivity to sunlight (photosensitivity)
Numbness.
Reduced ability to sense pain or extreme temperatures.
17 Oct 2017

Vitamin B-6 – Mayo Clinic

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@helennicola

Hi Bstrbrwn, FYI – some of us use stabilized RAla, which is somewhat more costly but supposedly more bioavailable, not the combo, both of which are sold on Amazon. (I originally took the combo and changed over noting a difference in efficacy) I take 300 mg. 3xday and it helps alleviate any pain for me. Helen

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@helennicola, what brand of RAla have you found to be most helpful. Thanks

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