1. < Neuropathy

Supplements - What helps nerve pain and/or neuropathy?

Posted by newzbug @newzbug, Nov 15, 2019

I was diagnosed earlier this year with "Sensorimotor Peripheral Neuropathy" over my whole body, though I am not yet showing symptoms everywhere. I do have numbness in all my toes, feet, a large section of my upper right thigh, large section of the side of my left calf, occasional ... numbness in my hands in the middle of the night. Anyway, my neurologist did suggest Alpha Lipoic Acid (otc supplement) to help with the neuropathy. She said that although studies suggest people who also have diabetes have had some success with taking this (I don't have diabetes), she said I might get some help from it. So, yep, it's been about 8 months I have been taking 600mg/daily and it seems to have helped lessen my feelings of 'burning feet'. I am going to increase my dosage to 800mg when I finish my current bottle. I use a brand that has no additives (colors, flavors, etc). Brand: Best Vitamins. Though I don't have diabetes, and it may be helpful only because I believe in it, that is something.

My husband periodically gives me massage on my ankles, tops of my feet and calves which seems to offer some help with the emptiness feeling on that lower part of my body. I am doing some reading research on any other supplements which could be of help. I try not to think about neuropathy too much, because I have since been diagnosed with Pulmonary Hypertension and CTEPH. I stick to reputable sites like the Mayo Clinic and PubMed as well as those of us who have personal experiences. Thanks to everyone here for your help. Maybe someday there will be a definitive cure for this wicked torture.

Interested in more discussions like this? Go to the Neuropathy Support Group.

crossette | @crossette | Feb 20, 2023
In reply to @jldavis823 "It everyone gets relief from ALA, I did not. There is no medication to cure neuropathy,..." + (show)
@jldavis823

It everyone gets relief from ALA, I did not. There is no medication to cure neuropathy, but there are numerous studies using supplements. I wanted a cure, not just pain relief. I read one study from the Cleveland Clinic that showed good results and have been following their recommendation with good results. They recommend taking 400 mg of CoQ10 and 20 mg of PQQ daily. The neuropathy in my hands is completely gone and my feet are much improved. The majority of the pain in my feet is gone, but I still have numbness in some places. I started this a year after chemo. The hands showed improvement quickly, the feet were slower. But the worst of the pain was gone in 3-4 months. Not an overnight cure, but my pain is gone, I stopped taking it when I quit getting improvement of the numbness. None of the pain as returned.

Jump to this post

@jldavis823 thanks for the positive results report. What kind of CoQ10 did you take? Ubiqunol or Ubiquinone? Hard to find a 400 mg capsule. What brand did you take?

REPLY
jldavis823 | @jldavis823 | Feb 20, 2023

I took Quenol. I found the 400mg on Amazon.

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crossette | @crossette | Feb 20, 2023

@jldavis823 What type of CoQ10 did you take? Ubiqinone or Ubiquinol? Hard to find 400 mg capsules. What brand did you take and how many a day? Thanks for sharing this promising treatment.

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dipperlip1 | @dipperlip1 | Feb 21, 2023

Where can I buy this and how much to you take?
I have been taken Alpha Lipoic
Acid (stabilized) for quite some time, 300 mg in am and 300 mg at bedtime. Has not helped a lot.
Thanks

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Feb 21, 2023
In reply to @dipperlip1 "Where can I buy this and how much to you take? I have been taken Alpha..." + (show)
@dipperlip1

Where can I buy this and how much to you take?
I have been taken Alpha Lipoic
Acid (stabilized) for quite some time, 300 mg in am and 300 mg at bedtime. Has not helped a lot.
Thanks

Jump to this post

@dipperlip1, you'll notice that we removed your email address. Connect is a public forum. We recommend sharing personal contact information using the secure private message function.

REPLY
gina5009 | @gina5009 | Feb 22, 2023

Many year ago Niacin (B Vitamin) was used to create a body flush. The patients would become very warm over their entire body. This obviously was circulatory. I am not recommending it to you, but it might be something you could ask your doctor about .
Gina 5009

REPLY
berniep | @berniep | Mar 15, 2023
In reply to @jldavis823 "It everyone gets relief from ALA, I did not. There is no medication to cure neuropathy,..." + (show)
@jldavis823

It everyone gets relief from ALA, I did not. There is no medication to cure neuropathy, but there are numerous studies using supplements. I wanted a cure, not just pain relief. I read one study from the Cleveland Clinic that showed good results and have been following their recommendation with good results. They recommend taking 400 mg of CoQ10 and 20 mg of PQQ daily. The neuropathy in my hands is completely gone and my feet are much improved. The majority of the pain in my feet is gone, but I still have numbness in some places. I started this a year after chemo. The hands showed improvement quickly, the feet were slower. But the worst of the pain was gone in 3-4 months. Not an overnight cure, but my pain is gone, I stopped taking it when I quit getting improvement of the numbness. None of the pain as returned.

Jump to this post

That's great. Please tell us what PQQ is.

REPLY
1 reply
Mentor
John, Volunteer Mentor | @johnbishop | Mar 15, 2023
In reply to @berniep "That's great. Please tell us what PQQ is." + (show)
@berniep

That's great. Please tell us what PQQ is.

Jump to this post

Pyrroloquinoline Quinone (PQQ)
--- Current Status of Polysaccharides-Based Drug Delivery Systems for Nervous Tissue Injuries Repair: https://www.mdpi.com/1999-4923/15/2/400

REPLY
1 reply
cgs | @cgs | Mar 18, 2023
In reply to @jldavis823 "It everyone gets relief from ALA, I did not. There is no medication to cure neuropathy,..." + (show)
@jldavis823

It everyone gets relief from ALA, I did not. There is no medication to cure neuropathy, but there are numerous studies using supplements. I wanted a cure, not just pain relief. I read one study from the Cleveland Clinic that showed good results and have been following their recommendation with good results. They recommend taking 400 mg of CoQ10 and 20 mg of PQQ daily. The neuropathy in my hands is completely gone and my feet are much improved. The majority of the pain in my feet is gone, but I still have numbness in some places. I started this a year after chemo. The hands showed improvement quickly, the feet were slower. But the worst of the pain was gone in 3-4 months. Not an overnight cure, but my pain is gone, I stopped taking it when I quit getting improvement of the numbness. None of the pain as returned.

Jump to this post

Thanks very much!

REPLY
bettyg81pain | @bettyg81pain | Mar 18, 2023

Does any of you take progabalin?
Have you considered the stimulator?
Sure appreciate everyone’s suggestions! It’s sure stopped my life and I want to get back to loving it!!
Going to Amazon right now

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