1. < Neuropathy

Supplements - What helps nerve pain and/or neuropathy?

Posted by newzbug @newzbug, Nov 15, 2019

I was diagnosed earlier this year with "Sensorimotor Peripheral Neuropathy" over my whole body, though I am not yet showing symptoms everywhere. I do have numbness in all my toes, feet, a large section of my upper right thigh, large section of the side of my left calf, occasional ... numbness in my hands in the middle of the night. Anyway, my neurologist did suggest Alpha Lipoic Acid (otc supplement) to help with the neuropathy. She said that although studies suggest people who also have diabetes have had some success with taking this (I don't have diabetes), she said I might get some help from it. So, yep, it's been about 8 months I have been taking 600mg/daily and it seems to have helped lessen my feelings of 'burning feet'. I am going to increase my dosage to 800mg when I finish my current bottle. I use a brand that has no additives (colors, flavors, etc). Brand: Best Vitamins. Though I don't have diabetes, and it may be helpful only because I believe in it, that is something.

My husband periodically gives me massage on my ankles, tops of my feet and calves which seems to offer some help with the emptiness feeling on that lower part of my body. I am doing some reading research on any other supplements which could be of help. I try not to think about neuropathy too much, because I have since been diagnosed with Pulmonary Hypertension and CTEPH. I stick to reputable sites like the Mayo Clinic and PubMed as well as those of us who have personal experiences. Thanks to everyone here for your help. Maybe someday there will be a definitive cure for this wicked torture.

Interested in more discussions like this? Go to the Neuropathy Support Group.

hotfeet | @hotfeet | Feb 15, 2023

To be clear, the massager model I have is a Nano and UPC BK3465 available at Bed Bath & Beyond for about $60 as it is on sale for now.
https://www.bedbathandbeyond.com/store/product/evertone-prosage-nano-percussion-therapy-massager-in-black/5544889
The one on the other link is not the model I have and can not recommend it due to complicated design. The BK3465 has a clean design that can be held from several angles or positions and no obstructive handles or un-necessary pcs that make it less versatile. Sorry about any confusion the first link may have caused.

REPLY
jldavis823 | @jldavis823 | Feb 15, 2023
In reply to @jakedduck1 "@jldavis823 How much benefit did you receive from the numbness? Jake" + (show)
@jakedduck1

@jldavis823
How much benefit did you receive from the numbness?
Jake

Jump to this post

Hands have no more numbness. Feet still have some, but I can feel the floor so I count that a win.

REPLY
mhr31 | @mhr31 | Feb 16, 2023

I'm sorry for your pain. I take the Alpha Lipoic Acid as well. I take 600 mg in the morning and 600mg
before I go to bed. VIT. B12 helps as does eating less sugar. I do not know your ability but stretching is a great way to get the blood flow going. Be carefull ,start out slowly and of course ask your doctor before starting anything new. GOOD LUCK and GOD BLESS

REPLY
1 reply
mhr31 | @mhr31 | Feb 16, 2023
In reply to @mhr31 "I'm sorry for your pain. I take the Alpha Lipoic Acid as well. I take 600..." + (show)
@mhr31

I'm sorry for your pain. I take the Alpha Lipoic Acid as well. I take 600 mg in the morning and 600mg
before I go to bed. VIT. B12 helps as does eating less sugar. I do not know your ability but stretching is a great way to get the blood flow going. Be carefull ,start out slowly and of course ask your doctor before starting anything new. GOOD LUCK and GOD BLESS

Jump to this post

This reply was to the NEWBUG

REPLY
treetop | @treetop | Feb 16, 2023

R-Alpha LIPOIC Acid helps. Magnesium Glycinate helps. COQ10 can help also. Benfotiamine (B1) helps. D3 can help 5,000mg. Saffron may help. These supplements each can help. Good old Absorbine Jr. in a concentrated form is Bio-Freeze and is great for topical use for burning feet (also hands and fingers). Good Luck to all and get the fires put out!

REPLY
jldavis823 | @jldavis823 | Feb 16, 2023
In reply to @jakedduck1 "@jldavis823 How much benefit did you receive from the numbness? Jake" + (show)
@jakedduck1

@jldavis823
How much benefit did you receive from the numbness?
Jake

Jump to this post

The numbness in my hands is completely gone. My feet still have some numbness, but I feel the floor all over my feet and the numbness is much less a problem.

REPLY
daninpain | @daninpain | Feb 16, 2023
In reply to @jldavis823 "It everyone gets relief from ALA, I did not. There is no medication to cure neuropathy,..." + (show)
@jldavis823

It everyone gets relief from ALA, I did not. There is no medication to cure neuropathy, but there are numerous studies using supplements. I wanted a cure, not just pain relief. I read one study from the Cleveland Clinic that showed good results and have been following their recommendation with good results. They recommend taking 400 mg of CoQ10 and 20 mg of PQQ daily. The neuropathy in my hands is completely gone and my feet are much improved. The majority of the pain in my feet is gone, but I still have numbness in some places. I started this a year after chemo. The hands showed improvement quickly, the feet were slower. But the worst of the pain was gone in 3-4 months. Not an overnight cure, but my pain is gone, I stopped taking it when I quit getting improvement of the numbness. None of the pain as returned.

Jump to this post

What is PQQ?

REPLY
2 replies
jldavis823 | @jldavis823 | Feb 16, 2023
In reply to @daninpain "What is PQQ?" + (show)
@daninpain

What is PQQ?

Jump to this post

Pyrroloquinoline-Quinone, PQQ, is a supplement that was developed for other uses. Howver, the Cleveland Clinic tested its use for Neuropathy, in conjunction with CoQ10. The National Institute of Health(NIH), has referenced other supplements being tested, but the Cleveland Clinic study seemed to show promising benefits. I once had the link to that study, but my laptop was stolen and it wasn’t on my backup. Haven’t been able to find it again since then.

REPLY
nuance501 | @nuance501 | Feb 20, 2023
In reply to @judithfraser000 "Alphalipoic" + (show)
@judithfraser000

Alphalipoic

Jump to this post

I had some luck for a few years with the R-lipoic acid enantiomer, but not alpha lipoic acid. The issue is the cost as it’s quite a bit more expensive.

REPLY
View MoreView Less
Please sign in or register to post a reply.