Supplement combination/effectiveness

Posted by wisfloj @wisfloj, Sep 27, 2019

Ergomax brand PEA was working so well after 9 weeks of 1200 mg. Per day, thought I was 'cured'. Pain and burning was rare and brief! Then…it comes back. Who would one go to in order to find out if supplements are cancelling each other, overkill in combination taken etc.? I take alpha lipoic acid in the R-ala form, acetyl L carnitine, turmeric and B12. Continuing with PEA since I stocked up! Medical doctors? doubt it, health food stores? Probably sell you more stuff! How do you find a chemist or biologist perhaps? Thanks for any advice.

@wisfloj

Hmmmm I read ALCAR was good for PN 🤔 when I ran out of it the pain came back and I thought that was the reason, so I started back up on it. I’ve been on turmeric for years. And yes I do need B12 -tested low and took too much and tested high, now I take less and tested mid-range. Well back to more research I guess. Thanks for encouraging me to stick with the PEA!

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@wisfloj
See the Risks section at
https://www.webmd.com/vitamins-and-supplements/acetyl-l-carnitine-uses-risks#1
where it counsels that acetyl-l-carnitine is not recommended for those with neuropathy.

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@elizm

@wisfloj
See the Risks section at
https://www.webmd.com/vitamins-and-supplements/acetyl-l-carnitine-uses-risks#1
where it counsels that acetyl-l-carnitine is not recommended for those with neuropathy.

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Interesting, right? My Neurologist recommended acetyl L carnatine as well and I have alot of questions for him next week on supplement protocols.

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@rwinney

Interesting, right? My Neurologist recommended acetyl L carnatine as well and I have alot of questions for him next week on supplement protocols.

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Rwinney-please post any supplement information after your appointment. Not only is it the supplement, but then it is how much? What brand or type of formula? Etc. Like alpha lipoic acid-my research led me to only take the R component. PEA- is micronized really better or no real difference? And Like drug side effect commercials, “ may cause diarrhea or constipation, sleepiness or sleeplessness. Oh, what to do…

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@rwinney

By the way, your PEA info was helpful to me. I read the goal is to take oral and topical cream. Are you using both?

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@burningfeetinphoenix here…I am taking 1,200 mg PEA, 400 mg, 3 times/day. Also using PEA cream 2 percent, 3 times/day. I am much better! Very little burning. However, now that I can wear shoes again and hike. my calluses are splitting open,. These developed over years of running and hiking, and they burn. This I believe is common with SFN. I lost a large # of sweat glands in my feet. Sweat aids in healing. Using Castor Oil wraps for this…looking for new shoes. Mostly a problem on uneven terrain. Once this experiment is over I will try compounded Phentyloin 10 percent topical…studies look good on this being effective. Will keep you posted…hope PEA does not stop working for now…tied of spending time focusing on my feet…cannot get much else accomplished. Pam

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@wisfloj

Rwinney-please post any supplement information after your appointment. Not only is it the supplement, but then it is how much? What brand or type of formula? Etc. Like alpha lipoic acid-my research led me to only take the R component. PEA- is micronized really better or no real difference? And Like drug side effect commercials, “ may cause diarrhea or constipation, sleepiness or sleeplessness. Oh, what to do…

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Indeed I will. Believe me, I go to my appointments well prepared with a solid list of questions. Pretty sure my Drs dread seeing me on the schedule!

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@burningfeetinphoenix

@burningfeetinphoenix here…I am taking 1,200 mg PEA, 400 mg, 3 times/day. Also using PEA cream 2 percent, 3 times/day. I am much better! Very little burning. However, now that I can wear shoes again and hike. my calluses are splitting open,. These developed over years of running and hiking, and they burn. This I believe is common with SFN. I lost a large # of sweat glands in my feet. Sweat aids in healing. Using Castor Oil wraps for this…looking for new shoes. Mostly a problem on uneven terrain. Once this experiment is over I will try compounded Phentyloin 10 percent topical…studies look good on this being effective. Will keep you posted…hope PEA does not stop working for now…tied of spending time focusing on my feet…cannot get much else accomplished. Pam

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Happy hiking! Glad to hear you're finding some relief. Thank you for posting your research and findings.

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@rwinney

Indeed I will. Believe me, I go to my appointments well prepared with a solid list of questions. Pretty sure my Drs dread seeing me on the schedule!

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Ha ha, you sound like me! We’re only asking them to do their job HELP us!

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@wisfloj

Ha ha, you sound like me! We’re only asking them to do their job HELP us!

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Exactly! I want my $40 co-pays worth.

FYI everyone…

I bought cold pressed hemp seed oil as part of my supplement protocol. I can't bring myself to swallow the advised 3 tbsp of oil so I ordered veggie hemp seed oil capsules instead.

Decided to rub the oil on my foot…my big toe and the joint area is constantly painful, flaming, swollen, turns purple and red. Can't be weight bearing at times, almost like it's broken, but it's not. This is part of what prohibits me from driving and walking.

Im finding the oil settles the area for a while. It's a start and makes good use of the product I invested in.

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@rwinney

Exactly! I want my $40 co-pays worth.

FYI everyone…

I bought cold pressed hemp seed oil as part of my supplement protocol. I can't bring myself to swallow the advised 3 tbsp of oil so I ordered veggie hemp seed oil capsules instead.

Decided to rub the oil on my foot…my big toe and the joint area is constantly painful, flaming, swollen, turns purple and red. Can't be weight bearing at times, almost like it's broken, but it's not. This is part of what prohibits me from driving and walking.

Im finding the oil settles the area for a while. It's a start and makes good use of the product I invested in.

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@rwinney
Regarding your poor big toe… have you been tested for gout? It sounds so much like what my sister encountered with her toe and thumb.

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@elizm

@rwinney
Regarding your poor big toe… have you been tested for gout? It sounds so much like what my sister encountered with her toe and thumb.

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No, I haven't. The pain began over a year ago as a result of walking too much. It was before I was diagnosed with SFN. I went to ortho and xrays were fine. They put me in a boot and said it was a sprain. Same happened with my hand…a "weeding injury" and i wore a hand splint. Body was falling apart…was SFN. Will check.it out further though. Thinking maybe a cortisone injection may help. Thanks for response.

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Hi Joanne, I think the only way you would know for sure of the effects of the PEA, would be to start eliminating each of the others, one at a time, or all together, and see what happens to your body just on the PEA. I don't even think a pharmacist would know for sure, because they study drugs, much more than supplements. Were all these supplements, taken all together, (including the PEA) helping before, and for how long? It is so darn sad what we go through to try to feel well. I just couldn't take another moment of feeling the burning in my feet. It was like, "What the hell is this already?" I did not feel like tapping pain away, telling myself I am well, and don't need pain signals; yada, yada, yada. So, I just smoked a reefer. Like I am 20 again! And this is so exceedingly crazy. Smoking grass to not feel pain. I could never have imagined my life would come to this. Like the Devil's joke. I don't know anymore. I just don't know….. Lori Renee

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@lorirenee1

Hi Joanne, I think the only way you would know for sure of the effects of the PEA, would be to start eliminating each of the others, one at a time, or all together, and see what happens to your body just on the PEA. I don't even think a pharmacist would know for sure, because they study drugs, much more than supplements. Were all these supplements, taken all together, (including the PEA) helping before, and for how long? It is so darn sad what we go through to try to feel well. I just couldn't take another moment of feeling the burning in my feet. It was like, "What the hell is this already?" I did not feel like tapping pain away, telling myself I am well, and don't need pain signals; yada, yada, yada. So, I just smoked a reefer. Like I am 20 again! And this is so exceedingly crazy. Smoking grass to not feel pain. I could never have imagined my life would come to this. Like the Devil's joke. I don't know anymore. I just don't know….. Lori Renee

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Well said sister!

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