Suggestions needed re questions to cover in upcoming appointment
Background: now 74-year old female with "inoperable" pancreatic adenocarcinoma diagnosed end of September 2022; many details about the earliest days after diagnosis are lost in the mists of time; now receiving gemcitabine and abraxane chemotherapy at a reduced dosage and lengthened interval because of "elderly bone marrow." From discussions on this group, I have gained the impression that it is a good idea to seek a 2nd or maybe even a 3rd opinion about treatment, preferably from a "center of excellence" which my (university) hospital is not.
I suddenly have been given an appointment for 2 days from now to see a new oncologist on staff who specializes in what I have and claims to take a more integrative approach to treatment than I have observed to date in my care.
What are some suggestions for questions based on your experience and considering that I don't know how long we will have; he apparently has a very full schedule already and my husband is guessing we may have only a half hour. I want to try to refrain from just complaining about why didn't my oncologist warn me about what seems to be a fairly regular complication of Chemo Brain or Chemo Hand Foot syndrome? why did I have to learn about it as well as possible preventive actions from the nursing staff? etc
How many think it is worthwhile to take the time for a PE (physical exam)?
As a retired physician I do plan to review whatever pathology reports I can reach through MyChart as part of my own preparation…