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Success with Prolia?
Due to stomach issues, I have been advised to have intravenous injections to treat my osteoporosis. I am leaning towards Prolia. Does anyone have any success stories? It seems all I hear about are the awful side effects.
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I agree that docs focus on the osteoporosis which may be a symptom and not the cause. Have they checked you parathyroid ?
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1 ReactionI was on Prolia for 8 years. Be careful if the doctor puts you on Evenity (builds bone). I had a lot of back, hip and pelvic pain with Evenity. I couldn't even sleep because of the aching and pain. I had to go back on Prolia.
hsum4
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1 ReactionI stopped Evenity after 5 months because of joint pain. It was so intense I couldn't sleep.
hsum4
I am a 66 year old female. In 2015, I slipped and fell on ice and cracked a vertebrae in my back (L-1). Prior to the accident, I was on omeprazole for over 10 years, and always told to take it once a day. Then it was twice a day. Never was I told to only take it for 2 weeks and then give it a rest for 2 weeks. Perhaps you all know that a side effect of omeprazole is brittle bones! After the accident, I was still taking omeprazole but now I was put on phosomax. Oh my, that felt like the flu on steroids for me. I was switched to Prolia (1 shot 2 x a year) and I took it for 7 years. I had wonderful results! No adverse side effects and my dexa scans were great! I was even out of osteopenia! So good, UNTIL … Reclast. The recommended treatment after success with Prolia is to have a Reclast infusion and go on a ‘drug holiday’ for two years. No osteoporosis meds for 2 years! But, after having the Reclast infusion, Fri., Jan. 13, 2023, my body reacted to it worse than with phosomax. At first it seemed like a minor discomfort, and then I woke up Saturday with debilitating pain in all my joints—worse than the flu, worse than COVID, and worse than the phosomax side effects. I called my rheumatologist and was told to just take Tylenol and Advil. Today is Mon., Jan. 16, 2023, and I am on my way to the ER. I have to use crutches to walk b/c my right knee feels like it is going to explode. Literally. I cannot bend it and the pain is excruciating and is not letting up.
So, to sum up, from my experiences, take omeprazole with caution, get Prolia shots twice a year, NEVER get Reclast, and stay healthy!
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4 ReactionsI am so sorry you have had such a bad reaction to Reclast. I feel like deja vu reading your comment. My doctor gave me a prescription with refills for an acid reducer. After taking it for 6 months, I quit. My next bone density test came back with -4.5 in the spine! I then had Reclast for a couple of years. I gained 6.2% in the spine on it. I never experienced what you are going through. The Reclast stopped working for me so my doctor started me on Prolia a year ago. Please give an update on your knee and how much bone density you gained on Prolia over the 7 years. Thank you and may you heal quickly.
Hi Chris, I was on Alendronate for 4 yrs then took a 2 yr med vacation. My Dec 2022 DXA results show my spine is stable but hip, femoral neck, forearm are now osteoporosis. My doctor told me he's putting me on Prolia. He said it works differently than Alendronate although it's still classified as Bisphosphonate. He said I could take Prolia for as much as 10 yrs, then he would put me back on Alendronate for 1-2yrs when I come off Prolia. Does this sound right to you?
Good evening @greyfox914,
I can understand why you are disheartened. I faced the same situation. I started Prolia after two years on Tymlos because I was not given any other options. I did not have it easy with pain in my gums and jaws.
Like you, I am not fond of any pharmaceuticals and stay away from OTC medications. I ended up with help from my new endocrinologist at Mayo Clinic to help me through the process of letting go of Prolia. I actually started the new medication on what would have been the second year of Prolia. So far....no side effects in the ensuing six months.
The fear of fractures just worried me no end. However, it's a new year and I am feeling more hopeful.
When is your endocrinology appointment?
May you be safe, free, and protected from inner and outer harm.
Chris
I’m having my second Prolia injection today. I talked to my endocrinologist yesterday and she feels I need to do this because of my high risk. I’ve been in a lot of joint pain and have other health issues. Yet I’m told it doesn’t matter. Get the injection anyway. So, I will get the injection today and hopefully I will be ok. I’m so discouraged to think the health professionals are not listening. I’m in terrible joint pain and yet they seem to be saying so what….just keep having joint pain because it’s the best thing you can do for yourself. I just don’t understand.
I was on Prolia for 4 years and showed improvement in my osteoporosis scores, but then in year 5 it got worst, so I was told to go off of Prolia and restart Fozamax, which I had taken years ago until it stopped working.
Before taking Prolia, I saw an endocrinologist, actually 2 different ones, who both suggested I take Forteo, which you can only take for 2 years because, after that, it causes cancer in rats. I said, no thank you and went on Prolia. Meanwhile, I do strength and weight training twice a week, walk and eat healthy foods. My grandmother and mother both had osteoporosis, and I had to go on Steroids for cancer in 1999, so I am a perfect storm for bone disease. My mom lived to be 93 and only broke an arm in the last year of her life. She also smoked and drank. Go figure!
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2 ReactionsMay I ask what medication you started in place of the Prolia?