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Subjective vs Objective: Invisible PASC “Monster” remains

Posted by modernluxuries @modernluxuries, 2 days ago

Pushing 3 years this July ‘25 since diagnosis - and, in all honesty, never thought that I’d still be battling through my PASC recovery and the endless, incredibly inconsistent and ever changing symptoms that have dominated my life.
I call it the Invisible Monster for (several) reasons. Initially, in trying to keep my sanity with a sense of humor to get me through each day, it of course is not surprising that my mental state, like so many others, fluctuates.

Specialist after specialist. Top tier professionals is their field ie. Neur ophthalmologists, neuropsychologists physical therapy, occupational therapy, long Covid recovery, clinics, and group therapy (virtual)…. The list is exhausting, and still my insurance comes to the conclusion along with some of my providers - the Objective versus Subjective.
Out of all the tests, which are ongoing nothing, nothing shows up on MRIs and the like. I’m mentally and emotionally exhausted, but I continue to fight…

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joffield | @joffield | 2 days ago

Keep up the fight! I know what you mean, tests upon tests, Dr's upon Dr's and yet we keep enduring daily. Symptoms seem to change for me like the seasons and hopefully we'll all get some answers soon as my limits are thin anymore, to help resolve these symptoms for everyone.
Keep your head up is all I can recommend.

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diverdown1 | @diverdown1 | 1 day ago

I completely understand. I have been fighting this for 3 years as well. I started my internship, yesterday. I am an online graduate student. Although I am doing parts of it from home, via internet, I woke up this morning with that feeling of being poisoned. Wondering how am I going to get through this. I took my medicines that seem to help with some symptoms...now I wait. I usually start feeling like functioning within an hour or so. It is a hopeless feeling waking up like this, knowing I must continue to fight. I hate that we all are dealing with this.

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debbie75 | @debbie75 | 1 day ago
In reply to @diverdown1 "I completely understand. I have been fighting this for 3 years as well. I started my..." + (show)
@diverdown1

I completely understand. I have been fighting this for 3 years as well. I started my internship, yesterday. I am an online graduate student. Although I am doing parts of it from home, via internet, I woke up this morning with that feeling of being poisoned. Wondering how am I going to get through this. I took my medicines that seem to help with some symptoms...now I wait. I usually start feeling like functioning within an hour or so. It is a hopeless feeling waking up like this, knowing I must continue to fight. I hate that we all are dealing with this.

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What medications or supplements do you take that offer you some relief? I've been on this journey since March/April 2021, so over 4 years with symptoms worsening over time to the point I can no longer work, the work that fulfilled my purpose on this Earth--providing psychotherapy to others in need, I can't even do that any more. I'm getting desperate and am willing to try anything (that is legal, of course). I appreciate you sharing. Praying for us all to get some answers--and relief--very soon.

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