Studies on Covid 19 vaccine causing PMR

Posted by bruce7501 @bruce7501, Mar 30 10:12am

Anyone familiar with ongoing studies on the COVID-19 vaccine as a possible cause of PMR?
I understand there are such studies.
Since one possible cause of PMR is believed to be a viral infection, could you trigger one by getting a vaccination? The many vaccine skeptics certainly warned us about possibilities like this.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

Profile picture for kjoed53 @kjoed53

@stonewheel
Maybe I'm being pessimistic, but I feel that the studies related to PMR are more so driven by the anti-vaccine crowd. We are not a priority for the big pharmaceuticals because there's no pot of gold waiting for them on the other side of their studies. I think any breakthrough for PMR will be by accident or a side note to a more financially rewarding study.

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@kjoed53 not pessimistic, that’s the reality. I’ve had 6 COVID vaccines but not had COVID. In the last 3 years, ( raise of my age, now 69) I started yearly flu vaccines for the first time ever, shingles vaccine and more as “recommended.”
Growing up in the age of Polio, as most of us here did, I am a believer in vaccines.
Having said that, for me personally, I think I just had a perfect storm brew. Vaccines, shoulder replacement, need a knee replacement, and two over the top mental stressors that were out of my control, in my opinion, led me to this autoimmune PMR hijacking of my body.
There’s no pot of gold for whoever finds a cure for PMR, and few resources for research.
I don’t know why or how I/we got it. But the fact is we did and as far as answers, we may never get them.
Grin, smile and treat my body right. Daily physical work-outs, positive mental attitude, differentiate what I can and cannot do (humbling) and visualizing the best outcomes is what I’m doing to cope with PMR, Prednisone and its many side-effects.
Best wishes.

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Profile picture for stonewheel @stonewheel

@kjoed53 not pessimistic, that’s the reality. I’ve had 6 COVID vaccines but not had COVID. In the last 3 years, ( raise of my age, now 69) I started yearly flu vaccines for the first time ever, shingles vaccine and more as “recommended.”
Growing up in the age of Polio, as most of us here did, I am a believer in vaccines.
Having said that, for me personally, I think I just had a perfect storm brew. Vaccines, shoulder replacement, need a knee replacement, and two over the top mental stressors that were out of my control, in my opinion, led me to this autoimmune PMR hijacking of my body.
There’s no pot of gold for whoever finds a cure for PMR, and few resources for research.
I don’t know why or how I/we got it. But the fact is we did and as far as answers, we may never get them.
Grin, smile and treat my body right. Daily physical work-outs, positive mental attitude, differentiate what I can and cannot do (humbling) and visualizing the best outcomes is what I’m doing to cope with PMR, Prednisone and its many side-effects.
Best wishes.

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@stonewheel
I tip my cap to you if you're still able to work out through this. I went to the grocery store yesterday, getting two bags of groceries and afterwards I could barely move my arms for the rest of the afternoon. It's like that with anything I do involving my arms. Walking is the only activity that I have been able to push a bit.

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@ kjoed53 I’m blessed (though don’t often feel or realize it.)
Keep walking. Walk more.

Have you tried Tai Chi?
I stumbled upon it while scrolling YouTube. It appeared to be easy and claimed good results. I watched a few free YouTube videos and learned them. Now I do them every day because they really do help me.

I also have a treadmill that I bought for my wife (years ago, that she really wanted but never uses) so I walk on it everyday at a rapid pace. Everyday means six days a week. Sometimes I feel like a day off.

I go at it in the mornings. I start with TaiChi, then isotonic exercise, followed by 45-60+ minutes on the treadmill and wrap up with a few more isotonic movements geared toward strength (for bones due to prednisone.) This takes
1-1/2 to 2-1/2 hours, I’m retired. The world can wait. “I must take care of myself first” is a whole new mindset for me. But if I don’t, well, I don’t want to go there. I’ll just say “I have to.” Because I do.

I started slow. 10-15 minutes a day, about 6 months before PMR really took hold of me, and added more repetitions and new movements every 2-3 weeks. Prednisone (started with 40mg/day, now using Kevzara and down to 6.5mg/day) stopped the pain so I continued to work-out after the diagnosis. I eased up a bit, for about a month, treadmill and Tai Chi only. But now, 5 months into PMR (hospitalized 4 days with a blood clot, 6 weeks after starting Prednisone) I’m pushing myself physically really hard. I got nothing better to do. I also eat right. Strict diet!
Really. If I die, I die. At least I tried.
I love throwing and playing catch with my granddaughter 8 y.o. (softball) and grappling with my grandson 6 (jujitsu.) Working-out daily allows me to keep it up.
I just googled “tai chi” and this pic is part of what popped up.
I hope this helps.

REPLY
Profile picture for stonewheel @stonewheel

@ kjoed53 I’m blessed (though don’t often feel or realize it.)
Keep walking. Walk more.

Have you tried Tai Chi?
I stumbled upon it while scrolling YouTube. It appeared to be easy and claimed good results. I watched a few free YouTube videos and learned them. Now I do them every day because they really do help me.

I also have a treadmill that I bought for my wife (years ago, that she really wanted but never uses) so I walk on it everyday at a rapid pace. Everyday means six days a week. Sometimes I feel like a day off.

I go at it in the mornings. I start with TaiChi, then isotonic exercise, followed by 45-60+ minutes on the treadmill and wrap up with a few more isotonic movements geared toward strength (for bones due to prednisone.) This takes
1-1/2 to 2-1/2 hours, I’m retired. The world can wait. “I must take care of myself first” is a whole new mindset for me. But if I don’t, well, I don’t want to go there. I’ll just say “I have to.” Because I do.

I started slow. 10-15 minutes a day, about 6 months before PMR really took hold of me, and added more repetitions and new movements every 2-3 weeks. Prednisone (started with 40mg/day, now using Kevzara and down to 6.5mg/day) stopped the pain so I continued to work-out after the diagnosis. I eased up a bit, for about a month, treadmill and Tai Chi only. But now, 5 months into PMR (hospitalized 4 days with a blood clot, 6 weeks after starting Prednisone) I’m pushing myself physically really hard. I got nothing better to do. I also eat right. Strict diet!
Really. If I die, I die. At least I tried.
I love throwing and playing catch with my granddaughter 8 y.o. (softball) and grappling with my grandson 6 (jujitsu.) Working-out daily allows me to keep it up.
I just googled “tai chi” and this pic is part of what popped up.
I hope this helps.

Jump to this post

@stonewheel
Great attitude saved me too.
You go!

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