Strange thyroid results

Posted by lgrec @lgrec, Jan 20 1:39pm

I’ve been diagnosed with hypothyroidism a few years ago so kind of new to this. I have a small nodule on my right thyroid. I take NP Thyroid everyday and my TSH is reading 3.96 (previously 3.54), Free T3 is 8.27 (previously 3.54), Free T4 is .91 (previously 1.06). What am I doing wrong?

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@inminn

So glad that is helping for you!
Unfortunately the natural thyroid hormone replacement brand I had been taking for years was removed from my insurance’s approved list suddenly, a few years ago, and ever since, I’ve had to make do with the expensive brand name because I wasn’t responding to generics.
The insurance is through my husband’s work, we can’t afford COBRA due to my pre-existing condition, and do not qualify for other programs, I’ve been hoping the company he works for will grow and offer a better plan.

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I pay $113. 00 Out of pocket for 90 days well worth it for your health, instead of trying
all the unnecessary treatments they over prescribe.

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It looks to me that you’re on the wrong medications. I take Synthroid 112 mcg and was also taking along with that, Cytomel 5 mcg to treat the Hashimoto’s. I recently weened off the Cytomel as it was too much medication, causing my body to become jittery. I’m only on the Synthroid now and feeling much better. Also, work with your Dr about getting your numbers more in line. You may also want to have a food sensitivity test done to find out what your body is sensitive to. That has helped me with inflammation in my body. Good luck on your health journey.

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I'm not sure this is the right place for this question, but...I have read that brain fog...feels like fuzzy brain to me...could be a symptom of thyroid issues. This started out months ago, but has gradually become a real issue with me. It is almost constant, every day, all day. As most of you know, the usual lab work says thyroid is 'normal'...and so many times it is NOT normal. Doctors just ignore what we tell them. This has become very challenging for me; just routine chores are difficult to focus on. I am 80, but I don't believe that is the reason. If anyone could help me get rid of the problem, it would be wonderful!

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@dorma

I'm not sure this is the right place for this question, but...I have read that brain fog...feels like fuzzy brain to me...could be a symptom of thyroid issues. This started out months ago, but has gradually become a real issue with me. It is almost constant, every day, all day. As most of you know, the usual lab work says thyroid is 'normal'...and so many times it is NOT normal. Doctors just ignore what we tell them. This has become very challenging for me; just routine chores are difficult to focus on. I am 80, but I don't believe that is the reason. If anyone could help me get rid of the problem, it would be wonderful!

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Yes, low thyroid can cause “brain fog” as well as other conditions like autoimmune disorders and atherosclerosis in the brain, age related. Many drs accept TSH levels over 3 as normal when that can actually show hypothyroidism. I would get a copy of your lab results and see what your TSH, T3&4 levels are and if TSH is over 3, see an endocrinologist. Usually other symptoms are present as well such as fatigue, weakness, constipation, dry skin and hair, feeling cold to name a few.

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Geepers, I have all those symptoms...

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Most of the last 25 years of hypothyroidism I had a TSH close to 0.4 (normal range T3 and T4), but then got a new doctor that decreased my synthroid meds from 88 to 75 mcg, and resulting TSH was 1.8 to 2.9. She and the subsequent doctor didn't believe me when I said my metabolism, constipation, and feeling cold were all better at higher TSH (higher end of hypothyroid, closer to hyperthyroid boundary). She finally (3 years) increased my synthroid 1x/week so I can bring my TSH to 2, still high but manageable. I am 69 and very active (bike around 6000 mi/year) and fluff up my metabolism with caffeinated coffee. Psysillium husk is useful for constipation (few folk get enough fiber). Now that I'm over long covid (8 months) I can increase my muscle/decrease fat, which also helps with hypothroidism and TSH levels.

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It would be good for you to see an endocrinologist. I've had hypothyroidism for ~25 years, managed with synthroid. Free T3 and T4 levels (different than just T3 and T4) should be 2.3-4.2 pg/mL and 0.70-1.8 mg/dL, respectively and based on my lab. TSH should range between 0.320 and 5.50 ulU/mL. When I was first diagnosed the prescribed synthroid had me at a TSH level of about 4; the next doctor increased my meds so my new level was 0.5. I then dropped about 15 lbs and became an exercise fiend. I do collect autoimmune diseases (sucky hobby) like celiac and collageneous colitis that are controlled by diet.

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Thank you all. Unfortunately, my second request for an appointment at Mayo was rejected as well, so I will have to battle the insurance company and my local doctors for now. But I am now determined to have a DEXA scan for osteoporosis evaluation, and to follow up with a cardiologist and attempt to get referrals to other specialists to further build my case or at least get better help.

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