Strange symptoms for 2.5 years now from neuro, BFS. bowel issues

Posted by joannemm34293 @joannemm30809, Jan 23, 2022

Over the past 2.5 years I have been sick with very strange head to toe neurological type symptoms from muscle twitching to pins and needles and extremities, searching for sometimes visual heightened awareness disturbances but also very common bowel issues.

I'm starting to finally connect all these dots that it seems like neurologist and endocrinologist and cardiologist and primary care doctors over the last 2.5 years running millions of dollars worth of tests cannot figure out what has caused all these head to toe strange neurological symptoms to bowel issues to visual disturbances to feeling a sensory overload sensory shift etc.

I'm noticing now as some of the symptoms dissipate slightly and other new symptoms crop up that I did not have two years ago etc that the morning time is the worst time for me and I noticed that when I get up I just feel sick from head to toe like a total overall sickness and neurological maybe autonomic nervous system issue maybe fight or flight adrenaline rushes even though all the testing shows that I don't have any problems with my adrenal glands etc so the doctors blame everything on anxiety and panic attacks. I just cannot believe that it's anxiety and panic attacks causing all these horrific symptoms. But I do notice when I get up in the morning that I have to go have a bowel movement 5 or 6 different times and every time prior to the bowel movement I feel really sick just an overall head to toe feeling yucky sick. Not an upset stomach type of sick but an overall head to toe feeling of just sickness like I feel like crap from head to toe but I can't pinpoint what areas really affected it's just a head-to-toe sickness but with that feeling I get I have to go have a bowel movement. Then I feel slightly better and then it seems like it builds back up again and I feel start feeling yucky again with a sensory overload like a sensory shift in my spatial awareness of where I'm at and I have to go to the bathroom again. So by noon time I've probably gone to the bathroom five times and it's not diarrhea it's just a soft bowel movement.

One doctor thought I had dysautonomia and then the other two doctors disagree. One doctor heart doctor thought I had vasovagal issues but the other heart doctor in the same clinic said I do not have vasovagal. A neurologist said I have benign fasciculations syndrome due to muscle twitching from head to toe and all other testing ruled out ALS or any other neurological problems. I've had a ton of blood work up everything from A to z blood workup wise and urine analysis has been done in everything's negative. I've had MRIs of the brain neck spine and the only thing the MRI showed for my age of 61 years old was degenerate spine disease with stenosis of the cervical spine with myelopathy.

Does anybody else have these strange kind of symptoms that then seem to affect your bowel movements? I cannot figure out what it is.

I'm not overweight, I drink plenty of water, I eat very healthy and I do not drink alcohol or take drugs yet my body is a disaster health wise.

It's very infuriating that after 2.5 years now one neurologist or cardiologist or endocrinologist or primary care doctor after running millions of dollars worth of test configure anything out. I even had stool samples done etc and everything is normal. This is so frustrating.

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

I recently learned frequent bowels movements, muscle weakness, and fatigue can be products of a hyperthyroid. I am looking into this next week when I see my rheumatologist about getting my referral to an endocrinologist kicked up sooner than July. I have trouble sleeping, muscle tremors (ALS and MS ruled out) but my TSH dropped from 1.5 to .62 on a recent blood test. .62 is supposedly in the range of normal but at the low end. The frequent bowel movements, even that wake me at night are debilitating and I can't gain weight despite not missing meals. Having a colonoscopy end of May and EEG and EMG early June. And worst of all, I want to have a knee replacement surgery but not until some of these other issues are sorted out. It is frustrating. M.E.

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