Stopping forteo

Hi
Well I've been trying to get an appointment but no luck. The secretary emailed me last week told me to pick either prolia or his zoledrinic acid which I picked zoledrinic acid because that's what I've been on prior to my BC treatment and it was working. I doubt he'll give me an appointment I don't understand these specialists. I have not even had a follow-up since my bone density in June which I want and I've been asking for an appointment. How would you taper off the needle you can't adjust the dose

The joint pain gone within a week for me. I tried Forteo (generic) twice over a period of 2 months.

sue417, I only meant a taper for a steroid, if you decided to take if for a week, having quit the Forteo. You should be able to get all of this by request, without seeing the doctor. You may be wanting to talk to them first. The waits are terrible.

Hi
No I don't want any more medication and I'm going to be going back on my once a year infusion zoledrinic acid. Just waiting to hear when he's going to have it set up who knows how long that's going to take. Canada's Healthcare has been crappy this last 4 years since covid

@sue417

Awful to hear that you are not getting timely medical follow up.

There are now major cutbacks to all services in Canada.
I also live in BC, and friends tell me it's getting more difficult
to get attention at some of the Urgent and Primary Care Centre (UPCC) centres they went to.
Today I read this article:
https://www.cbc.ca/news/business/canada-revenue-agency-call-centre-job-cuts-1.7615306
The Federal Government has slashed 10%-- 20% or more
for all services: meaning there is less money transferred to Provinces.
My personal experience is this:
my annual blood test - done last month -
less than half of the usual tests were requested and therefore not done.
I will ask my family doctor why this has changed from the last decades.
How can we catch incipient medical conditions, if we are not
monitored properly with necessary basic blood tests.

Hoping you get the attention you need.

Hi
Yes it's just ridiculous. I will just go into the office if I don't hear from them Monday because I don't dick around it's my health my results I want to know what's happening. I work in the hospital for 34 years and I have never seen things the way they are now I retired 4 years ago

Sue, I am in the place like you. The pain of inflammation is at unbearable point. I have fiven myself 48 injections and the pain is taking a turn for the worst. I read that skipping one dose is ok but I am considering skipping all together until I get a hold of my endocrinologist. My numbers are not good -4 on my spine, I am 67 and was looking forward to adjusting to this med. I don’t feel safe to walk because of the pain.
Let me know if you choose another med or have considered Evenity.
Hugs

Hi
Well you're a pretty tough cookie if you've done that many I only was on it almost 3 weeks I just could not cope with it so I stopped before I saw the doctor sent him an email with what was going on and he was okay with it he said if it makes you that sick then you should not take it. So I was doing zoledronic acid for the past 3 years prior to this medication and it was working fine the only thing that screwed me up was having radiation for breast cancer. So I am going back on my zoldronic acid hopefully I have my infusion by October. The downside to that is I can't have it in the city I live in I have to go an hour away to get the infusion because now the company that makes the drug is only doing it at a private Clinic. Evenity I cannot take because I had a TIA in 2019. And the likelihood that you won't get the same pain with that drug is Slim from what I've read. What were you doing prior to forteo. Were you on a bisphosphonate prior

Hi
So just wondering if anyone has had long-term joint pain after stopping forteo I am still struggling with joint pain it's crazy and and the fatigue which I had before but not as bad as this has been

Sue, teriparatide is know to prevent synovitis and to prevent the degeneration of cartilage in the joints.

Forteo can increase serum uric acid levels in some which could cause crystal depostion in the joints. I've read that sustained levels of high serum calcium can cause calcium deposition in the joints.

Most studies don't credit Forteo with other than mild joint pain during use. There is a retrospective associational Chinese study that concludes that Forteo may cause joint and muscular disorders. https://pubmed.ncbi.nlm.nih.gov/39016171/
More than that though I trust your experience which seems to implicate Forteo. I hope you can get imaging of the most painful joints. It isn't sufficient for a physician to say that you have arthritis. That's just telling you what you've told them. Even if Forteo was the initiating cause, there should be something that could alleviate the pain. I'm glad to hear the fatigue is lifting a little.