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Stopping ADT Scared and Anxiety Update
I met with my urologist/surgeon this morning. We discussed both him and my oncologist recommending that I stop ADT (Orgovyx).
Prostectomy+ Seminal vesticals+7 lymph nodes 01/2022
Gleason 9, Decipher .99, 1 lymph node positive
Started ADT on Orgovyx 01/2023 prior to radiation
Pelvic radiation completed 05/2023
Still on Orgovyx-- 2 1/2 yrs total, 2 yrs since radiation
PSA has been undetectable at < 0.01 since radiation (2 years now). Last PET scan a year ago is clear.
I'm scared to do it, but both drs say it's the right thing to do. My PSA will be monitored very closely and if PSA starts to do back up, we'll do a PET if needed and treat it. I think I'm in good hands. If cancer recurrs, treatment will be early.
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I can relate in some ways because both my parents suffered prior to their death; my mom with CHF and my stepfather with ALS
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1 ReactionAt 86 have had about three years of ADT - multiple drugs - with PSA undetectable . Stopped all med. Had two years where PSA stayed undetectable. Now it is back. Last reading was just 0.1, but after nearly five years of undetectable it as me worried. Next tests in Feb 2026.
If higher will have PET scan. Dr. has a plan for treatment based on what Feb tests show.
Yes, I forced him to tell me what death from prostate cancer would be like, and screaming in intense pain was the part I remember. So good to be scared, but God is good. and there is a plan for if the cancer comes out of remission.
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1 Reaction@ikep
My father died from prostate cancer. He had his teeth grow down and crowned without Novacaine. The last couple of weeks before he died, he was on so much morphine he couldn’t talk with anybody.
It’s been 14 years since my PSA rose after surgery. I’m still around and most people are along with me. Not that many die from prostate cancer these days, The treatments are excellent.
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2 ReactionsThank you for the encouragement. I have good doctors and they have a game plan for if my PSA continues to climb,
This reply probably a little late to your concerns, but Jeff is telling it straight. 20 years for me, thank the lord. Still have cancer, still receiving scans and blood work. Hope yours goes in your favor God bless you
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