Stiff Person Syndrome: Want to connect with others

Hi @suzieflynn, please click this link https://connect.mayoclinic.org/discussion/stiff-person-syndrom/ and join the discussion with other members talking about stiff person syndrome like @sandra319 @peggi @suzanneleafbrock @bryan_in_dallas and @hammere4,

@pattygail asked some of the same questions you're asking about what to expect and treatments options. Suzie, when will you be getting infusion treatment?

Any treatments that have worked im still waiting for infustion treatemen

thank you

@suzieflynn, If your question is how to do you contact Mayo Clinic, you can contact one of the appointment offices. The
contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

yes

how do i contact them

Suzie, you may also be interested in this discussion with @pattygail @sandra319 and @hammere4,
- Stiff Person Syndrome https://connect.mayoclinic.org/discussion/stiff-person-syndrom/

@suzieflynn, I have no medical background or training but I'm not sure anyone can tell you what's going to happen because the prognosis varies depending on a person’s symptoms. You can find more information here:

Stiff Person Syndrome: Outlook / Prognosis:
-- https://my.clevelandclinic.org/health/articles/6076-stiff-person-syndrome/outlook--prognosis

Here is another patient story that you may find helpful -- Sharing Mayo Clinic: Diagnosed with stiff-person syndrome:
-- https://newsnetwork.mayoclinic.org/discussion/sharing-mayo-clinic-diagnosed-with-stiff-person-syndrome/

please someone tell me what is going to happen to me, I cant find anything online I have been on every website

low dose baclofen 5mg pt and waiting for infusion