Stiff Person Syndrome: Want to connect with others

Posted by Suzanne Leaf-Brock @suzanneleafbrock, Jul 5, 2011

Am interested in connecting with people who have this or are significant others of people who have this condition. (I'm in the latter group).

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

suzieflynn | @suzieflynn | Jul 13, 2020

In reply to @johnbishop "@suzieflynn, If your question is how to do you contact Mayo Clinic, you can contact one..." + (show)

thank you

John, Volunteer Mentor | @johnbishop | Jul 12, 2020

In reply to @suzieflynn "how do i contact them" + (show)

@suzieflynn, If your question is how to do you contact Mayo Clinic, you can contact one of the appointment offices. The
contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

suzieflynn | @suzieflynn | Jul 12, 2020

In reply to @sandra319 "Does anyone have stiff person syndrome? If so was oy diagnosed with gad65 blood test ?" + (show)

yes

suzieflynn | @suzieflynn | Jul 12, 2020

how do i contact them

Colleen Young, Connect Director | @colleenyoung | Jul 11, 2020

In reply to @suzieflynn "Thank you very much Does anyone know what is going to happen to me" + (show)

Suzie, you may also be interested in this discussion with @pattygail @sandra319 and @hammere4,
- Stiff Person Syndrome https://connect.mayoclinic.org/discussion/stiff-person-syndrom/

John, Volunteer Mentor | @johnbishop | Jul 11, 2020

In reply to @suzieflynn "please someone tell me what is going to happen to me, I cant find anything online..." + (show)

@suzieflynn, I have no medical background or training but I'm not sure anyone can tell you what's going to happen because the prognosis varies depending on a person’s symptoms. You can find more information here:

Stiff Person Syndrome: Outlook / Prognosis:
-- https://my.clevelandclinic.org/health/articles/6076-stiff-person-syndrome/outlook--prognosis

Here is another patient story that you may find helpful -- Sharing Mayo Clinic: Diagnosed with stiff-person syndrome:
-- https://newsnetwork.mayoclinic.org/discussion/sharing-mayo-clinic-diagnosed-with-stiff-person-syndrome/