Stiff Person Syndrome: Want to connect with others

Best wishes to uou

I didn't have tremors but had a lot of pain in my leg at night it would act like ressless leg it took about 2years before I was diagnosed with stiff person

Dropping things stiffness tremors falling chronic pain high gad 250 plus can't walk or sit long etc.

what were some of your signs of stiff person

Best wishes to you

yes it was with the blood test and spinal tap I have been diagnosed for about 7years

I was diagnosed a few weeks ago with two gad 65 tests that were higher than 250. The doctor spoke to another who had done iag testing and that was .93 sent to Mayo Clinic now my doctor wants me to do iag testing. I have all the stiff person. Symptoms. Stiffness tripping startle easy stress sets it off. My ivig is on hold I was due to start Monday. He wants iag test done. He ordered 2 gad 65 now is waffling.

Welcome to Connect, @sandra319.
I moved your message to this existing discussion about Stiff Person Syndrome so that you could meet @pattygail. I'd also like to invite @stayfree to join us here. She was talking about GAD65 here http://mayocl.in/2lSKMjs and may have some thoughts to add.

Sandra, if you read through the past messages of this discussion, you'll see that @johnbishop has provided a number of useful resources about SPS. When were you diagnosed? What symptoms are you experiencing?

Does anyone have stiff person syndrome? If so was oy diagnosed with gad65 blood test ?

I wanted to let you know that I do nurofeedback and it helps with pain