Stem Cell Transplant: What is Recovery like?

Posted by jeffhampton @jeffhampton, Jan 6 4:44pm

Is anyone willing to share their Stem Cell Transplant experience and what the recovery process was like? As I said in an earlier post, I will be having my transplant in a few weeks and it would be great to know what others have experienced. I realize everyone's journey and experience is unique as it relates to the transplant, GvHD, etc. but I think it may help me as I mentally prepare.

Interested in more discussions like this? Go to the Bone Marrow Transplant (BMT) & CAR-T Cell Therapy Support Group.

@jeffhampton

Thank you, @loribmt

Fortunately I live within 35-40 minutes of Barnes Hospital here in the St. Louis area. I am very lucky in that regard. I am also fortunate to have my wife, one of my sisters, and two of my 4 daughters local and willing to help whenever necessary and needed.

One of my daughters is my donor. She is a half-match, whatever that means. It was originally going to be my brother who was a full match but a health issue prevented him from donating.

I really appreciate you and others taking the time to respond. I have read through some of the experiences of other members from the links you shared last week. Honestly this is the first time in my life that I have feared anything. I have ran 50k races and, hopefully will run some ultramarathons again, competed in many other athletic endeavors and have never felt fear or intimidation. But this transplant is a huge cliff and it has hit my fear of heights, so to speak.

Thank you again for the guidance.

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Hi @jeffhampton. Having a BMT is a big commitment and I know you were pondering about making the decision to go ahead or not. Have you come to a resolution? Is there a target date?

REPLY

Hi @jeffhampton, it’s been a couple of months since we’ve talked about you having a stem cells transplant. I wanted to check in with you to see where you are in the process? Have you had the transplant yet or do you have a
Day 0 set? If you’ve had the transplant, how is recovering going?

REPLY
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