Stem Cell Infusion
Has anybody ever tried stem cell infusion to help with regeneration of small nerve fibers. It's a very expensive treatment and you have to go out of the country to get an infusion using stem cells from somebody else (usually from women who donate umbilical cords).
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Welcome @dkwoods, Definitely not on my neuropathy bucket list - too much money and no guarantees. You might find it helpful to scan through the related discussions in the Neuropathy Support group.
-- Consulting with Mayo about stem cell treatment: https://connect.mayoclinic.org/discussion/consulting-with-mayo-about-stem-cell-treatment/
-- Stem cell treatment for small fiber neuropathy: https://connect.mayoclinic.org/discussion/stem-cell-treatment-for-small-fiber-neuropathy/
-- Mesynchymal Stem Cells to treat Neuropathy: https://connect.mayoclinic.org/discussion/mesynchymal-stem-cells-to-treat-neuropathy/
-- Stem cell treatment for peripheral neuropathy - any good?: https://connect.mayoclinic.org/discussion/stem-cell-treatment-for-peripheral-neuropathy-any-good/
I do think stem cells offer a lot of hope. But where there is hope, there is also hype and charlatans. Just saw this recently and completely agree with it.
-- FDA must regulate stem cell therapies to mitigate risks to patients and the public:
https://www.pnas.org/doi/10.1073/pnas.2508586123
Have you done any research into the clinics doing the infusions?
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1 Reaction@johnbishop, thanks for the information. I've researched several clinics and keep coming back to Stem Cell Institute of Panama founded by Dr Neil Riordan who is a pioneer in the field of stem cell therapy. The issue as you mentioned is an approximate cost of 30K with no guarantee of helping SFN although it could provide numerous other health benefits. I think 5 years from now there will be a lot more studies and data available of the benefits of regenerative stem cell treatments for neuropathy.
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4 ReactionsI have a friend with POEMS disease, is fully disabled. He also looked into stem cell but the cost was too much. He visits Mayo once a year for checkup but no new solutions.
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