1. < Polymyalgia Rheumatica (PMR)
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Starting Kevzara (Sarilumab) in a few days

Posted by karenel @karenel, Oct 10 3:00pm

I am six months in to PMR and tapered down to 10mg but had a flare there so i'm back to 12.5. I'm adding Kevzara starting Tuesday, and I'm very hopeful it will make the taper easier.

I see there are some older discussions about Kevzara.

I look forward to hearing anyone's current updates or experiences!

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

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cwbf | @cwbf | Oct 14 8:49am
In reply to @tweetypie13 "@cwbf good luck with the Kevzara end date! How long on a Kevzara and what intervals..." + (show)
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@cwbf good luck with the Kevzara end date!
How long on a Kevzara and what intervals for injection?

I too was hoping for December…..however
Interestingly, my Rehumy just told me that 12 weeks at 3 week injection intervals is NOT enough time to chg to 4 week intervals.
“There’s a risk if a flare over 50% of the time.”

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@tweetypie13
Thank you. Every two weeks for a year, ending in December. For what it's worth, the board certified rheumatologist at Vanderbilt said tapering was not necessary and that "most" patients do not have recurrences. We'll see.

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tweetypie13 | @tweetypie13 | Oct 14 12:25pm
In reply to @cwbf "@tweetypie13 Thank you. Every two weeks for a year, ending in December. For what it's worth,..." + (show)
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@tweetypie13
Thank you. Every two weeks for a year, ending in December. For what it's worth, the board certified rheumatologist at Vanderbilt said tapering was not necessary and that "most" patients do not have recurrences. We'll see.

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@cwbf I have heard too. We did try to stop Kevzara after 13 months and my numbers went up, no discomfort though. So this time, I’m “following “ the advice . (I am an independent soul).
Keep in touch

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boomermeg | @boomermeg | Oct 14 12:28pm
In reply to @dadcue "@karenel It truly is an exciting time for people with PMR and GCA. Nothing much changed..." + (show)
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@karenel

It truly is an exciting time for people with PMR and GCA. Nothing much changed for more than 50 years and now there finally is some progress being made. There still is a long way to go. I think we are like pioneers in one way of looking at it.
https://www.healio.com/news/rheumatology/20250220/tsunami-of-effortbrings-biologics-to-the-forefront-in-giant-cell-arteritis-pmr

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@dadcue
Thanks so much for posting this link! I had recently searched for new treatments for PMR and the new biologics
came up as in trials, etc. They're all listed in this link. It is exciting because the has better percentage of help and not same side effects profile.
Blessings.

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