Starting Bendamustine and Rituxin for Follicular Lymphoma

Posted by valandsheri @valandsheri, Jan 16, 2023

Hi - My husband has been diagnosed with Follicular Lymphoma and he will be starting treatment soon. He and his doctor have both agreed this is the best route for him. He is wondering how others have done with this treatment regarding side effects and quality of life during and after treatment. He is 75 years and in very good shape. He has a really good attitude too - I'm the one who is kind of panicking. He completed proton radiation therapy for prostate cancer almost 4 years ago and did quite well with it - but we're thinking this will be a different beast altogether. Any words of wisdom will be greatly appreciated. Thank you!

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Dear Quimbie,

Thank you so much. I appreciate you sharing your experience and I will pass it along to him. I know he will appreciate it as well. When people like you that have been through it your words and experience mean so much to those of us traveling that road now. It helps us keep that good attitude that is so important. Thank you for your prayers. Always positive❤️🌻

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After 3 months with this combo, it was determined I was having allergic response to bendemustine.
I'm so much better without it but continue on ritual, no apparent side effects

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@mysharona

After 3 months with this combo, it was determined I was having allergic response to bendemustine.
I'm so much better without it but continue on ritual, no apparent side effects

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Whoops that darn autocorrect changed my comment... yes I'm on a ritual but also it was to say rituxmaub and doing 👍

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@mysharona

After 3 months with this combo, it was determined I was having allergic response to bendemustine.
I'm so much better without it but continue on ritual, no apparent side effects

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Welcome to Connect, @mysharona. I have to admit that now I’ll have 🎶My Sharona🎶 going through my head for the day! 😅
Thank you for sharing your experience with Bendamustine and Rituximab. They have a pretty good track record for helping keep some of our blood conditions under control but sometimes people have reactions. Sounds like that’s what happened to you with the bendamustine. I’m happy to hear you’re feeling better now that it’s been removed from the treatment plan. Were you also diagnosed with follicular lymphoma or is this for another blood condition?

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My father was diagnosed with follicular B cell Lymphoma diagnosed in stage 4. He is 76 years old. He has type 2 diabetes and a stroke 7 years ago that impaired his right side. chemo is not offered as an option.

Rituximab is what they are offering. We have not started it yet. Are there other alternatives as well or better than Rituximab any suggestions or information on other ways to support and fight his cancer With
in addition to that?

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@sfaceym

My father was diagnosed with follicular B cell Lymphoma diagnosed in stage 4. He is 76 years old. He has type 2 diabetes and a stroke 7 years ago that impaired his right side. chemo is not offered as an option.

Rituximab is what they are offering. We have not started it yet. Are there other alternatives as well or better than Rituximab any suggestions or information on other ways to support and fight his cancer With
in addition to that?

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Welcome, @sfaceym. I moved your question about starting treatment for follicular B cell lymphoma to this existing discussion:
- Starting Bendamustine and Rituxin for Follicular Lymphoma https://connect.mayoclinic.org/discussion/starting-bendamustine-and-rituxin-for-follicular-lymphoma/

I did this so you can read previous posts and comment with other members like @valandsheri, @hnipper1 @vonbaron36 @bogie60 @lee59 @susanlim @caracello22 and more who also have follicular lymphoma and share their treatment experiences - some with Rituximab or a combination of meds.

Rituximab is a type on immunotherapy which targets the B-cells and is quite effective in treating lymphoma. It sounds like your dad's cancer team have considered his health status and related conditions to consider a treatment that is best for him. But I'm reading hesitancy in your post. Were their issues raised that have you concerned about the choice of immunotherapy? What concerns do you have?

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