Started Carbidopa/Levodopa Today
I'm excited. I'm praying for relief i don't have to work until the weekend, so I'm not going to be doing anything for a couple of days
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@carogemini
Carl Beech holds webinars for different time zones and they are worth watching
@wkrebs59
yes i suggest getting one. charge lasts 3 hours and then 40 mins to recharge.
the 80/20 rule applies,ie 80% get benefit and sadly I fall into the 20% with my front lobe dysfunction.
@carogemini Hello there! I have been talking to my husband about getting this product " Beech Band" Do you have it or have any comments on it's usefulness? One thing I have heard is it seems to only hold about an hour of charge for many people. Since I am not too familiar other than that it has been helpful for many other people. I appreciate any and all your suggestions. Thank you Wendy
@wkrebs59
Can I suggest you look online at an English product called Beech Band
@hopeful3325 I do hope you adjust to the medication Carbidopa/Levodopa without any problems. It has helped me in controlling my tremors where other medications had not. I was on so many of this medication that my neurologist switched it to the Liquid form known as , Vyalev . Once you get to the proper dose you should really feel a big difference. I went up to the 4 pills a day and did that for about eight months. Any transition into a new medication can be quite frightening. I started to notice the changes after about a week since the Primidone had not stopped my tremor. I understand each of our doses will be different so hopefully when you get to the full dose your symptoms will be controlled and you are able to focus on all the other aspects we need such as exercise, diet and overall well being which is all affected with our condition. Do let me know how you progress and if I can share anything else with you.
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1 Reaction@kathy49 My VA Neurologist and the VA Pharmacist both told me to take my Carbidopa/Levodopa 30 minutes prior to a meal. I was told that your brain needs the dopamine gain from the Levodopa….and that protein from your meal interferes with the efficiency of that dopamine uptake. The Carbidopa part of the prescription is to aid and help you with feeling nauseous. So it makes sense to me that taking the medication before the meal might be a good thing. Work with your Doctors and Pharmacists, hopefully they will adjust medications to get you the relief you need!
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4 Reactions@kathy49 My husband takes an extended release form at night, Carbidopa/Levodopa Er tablets 25/100.
@sdcz
sorry that should say: should NOT be taking my meds with meals...
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1 Reaction@kathy49 From what I understand, Rytary is longer-lasting. Here is the Rytary website, where you can read about this medication. https://rytary.com/
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1 Reaction@kathy49 I understand that protein interferes with C/L absorption. I always take it with food, as I have a tendency to be easily nauseated.
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