Started Carbidopa/Levodopa Today

Hi

I already had a brain MRI, so we are completing the battery of scans with the S-DAT next week. I'm on day 3 of the medicine, and can see some minor improvements.

Hello @radioactivems,

I am glad that @lisalucier tagged me about your post. I understand that you are beginning treatment for your PD-like symptoms with medication. In my case, the neurologist ruled out other disorders by ordering a brain MRI as well as EMG and other tests. After all of the results came back and no other reason was found, I also started carbidopa/levodopa. I noticed a tremendous improvement in my symptoms within 2 weeks.

Perhaps your doctor has already suggested beginning the medication with titration. This means starting the medication slowly or not taking the full dose right away. I started with a 1/2 pill once a day for one week, then added a 1/2 pill each week until I was taking 3 pills per day. This will help your body adjust to the medication without the side effects.

I would like to hear how you feel after you start with the medication. Will you continue to post updates?

Correct, my doc is leaning heavily toward a PD diagnosis due to my symptoms, physical examination and family history. However, he isn't going to make a formal decision until we have the test results.

Hi, @radioactivems - so, just so I'm clear, you were prescribed the carbidopa/levodopa to deal with the trembling in your hands, not for a formal diagnosis of Parkinson's at this time?

My mom died from PD, so I want to get on top of it. I'm dealing with quite a bit of trembling in my hands, which I would say is the biggest issue. I haven't been officially diagnosed yet, but I'm traveling to MN next week to undergo a series of tests. I know there's no cure, but I want to attack this, so I can live the best life possible.

Thanks for your help!

Mike

Glad that you connected with @jrwilli1 about starting your carbidopa-levodopa today, @radioactivems.

Here is some Mayo Clinic information on this medication, if you're interested:

-Carbidopa and levodopa (oral route)
https://www.mayoclinic.org/drugs-supplements/carbidopa-and-levodopa-oral-route/description/drg-20095211
I also wanted to tag other members who have mentioned this medication or Parkinson's treatment more broadly to offer their tips and experiences @cartercd @jaybee51 @anro @jflamini @lkirley18. I'd also like you to meet @pbarr @dstrelinski @hopeful33250, who may have some thoughts or tips you for as you begin your journey with this medication.

What relief are you most hopeful for, radioactivems?

Thanks!

My husband has been in it for at least 8 yrs and they have increased the dose through the years but very helpful. Now my brother just started it as well this month and already he has seen a decrease in some of the symptoms. Good luck