Stage 4 colon cancer with metastasis to lungs.

Posted by lah @lah, Mon, Oct 7 8:04pm

Hubby had a CT scan last Thursday. Today we met with the dr.
Some of the lesions have grown.
Starting on immunotherapy -vectibix -Wednesday. Every other week. Then another ct scan in 6 weeks.
I don't even know what to do anymore. I feel like its all a dream.
I'm lost. And afraid.

@lah This is a difficult time for you, and for your husband, both. I hope that @merpreb will check in and give you her thoughts.
Do you have family and good friends nearby to reach out to? I would also think about reaching out to a wellness group for support and education. Journaling your fears and thoughts might help alot, also, if you can.
Ginger

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@lah How has your day gone, today? I hope your doctor was able to give you some information on what you and your husband may expect in the next six weeks with the immunotherapy. @merpreb is not available right now, but perhaps @IndianaScott would be able to give you a bit of insight on how to manage this new change in your situation?
Ginger

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@gingerw

@lah How has your day gone, today? I hope your doctor was able to give you some information on what you and your husband may expect in the next six weeks with the immunotherapy. @merpreb is not available right now, but perhaps @IndianaScott would be able to give you a bit of insight on how to manage this new change in your situation?
Ginger

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Thank you Ginger.
It feels like a dream. A bad dream that will never ever go away. Once cancer enters your life, it will never be the same again.
He has been on an immunotherapy before. Dr says similar side effects. Ugh.
Up to get ready for my yoga class this morning, so looking forward to it! then to work for couple hours, then his appt for first immunotherapy at 10:15. I rescheduled my therapy appt for today just too much going on. We get our 5 year old grandson for a couple hours this evening. He truly makes us smile.😊

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@gingerw

@lah This is a difficult time for you, and for your husband, both. I hope that @merpreb will check in and give you her thoughts.
Do you have family and good friends nearby to reach out to? I would also think about reaching out to a wellness group for support and education. Journaling your fears and thoughts might help alot, also, if you can.
Ginger

Jump to this post

My family all lives out of state. I have some friends, but this has been going on for 6 years. I think ppl just don't know what to say anymore or are tired of hearing it, uncomfortable because what can they say except. I'm sorry.
I'm wanting to purge my house if all the unnecessary stuff . If i only had the time to do it.

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@lah

My family all lives out of state. I have some friends, but this has been going on for 6 years. I think ppl just don't know what to say anymore or are tired of hearing it, uncomfortable because what can they say except. I'm sorry.
I'm wanting to purge my house if all the unnecessary stuff . If i only had the time to do it.

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@lah Not sure where you live, but is there any kind of a wellness community or support group? Perhaps something through a religious/spiritual place? Please do not take yourself off the schedule with your therapist. Now more than ever you need that support. You're very right, getting a cancer diagnosis changes everything, and then complications set in. I am on my fourth round of cancer, but the first one as wife to my husband. He finally had to come to grips with it last night, not an easy task at all. Please stay here and talk to us. We can lend a shoulder. an ear, and our experiences.
Ginger

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@gingerw

@lah Not sure where you live, but is there any kind of a wellness community or support group? Perhaps something through a religious/spiritual place? Please do not take yourself off the schedule with your therapist. Now more than ever you need that support. You're very right, getting a cancer diagnosis changes everything, and then complications set in. I am on my fourth round of cancer, but the first one as wife to my husband. He finally had to come to grips with it last night, not an easy task at all. Please stay here and talk to us. We can lend a shoulder. an ear, and our experiences.
Ginger

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Thank you Ginger. I will. Sitting with him now. He is dozing and infusion #1 is almost done.
What did you mean 4th round of chemo
Do you and your husband both have/had cancer?
Live close to Philadelphia. Seems most support groups around here meet during the day. Seems silly. Most of us have to work!

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@lah

Thank you Ginger. I will. Sitting with him now. He is dozing and infusion #1 is almost done.
What did you mean 4th round of chemo
Do you and your husband both have/had cancer?
Live close to Philadelphia. Seems most support groups around here meet during the day. Seems silly. Most of us have to work!

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@lah When you get home, both of you will want a nap or a rest!
No, this is my fourth go 'round with cancer, all were different types. None were metastisized. Three involved surgery, but this last one now is a blood cancer, so cannot do surgery. My husband has not had cancer.
Contact those support groups and ask them for resources for groups that might meet on evenings or the weekends. Perhaps there is even a patient-and-caregiver group you could attend?
Ginger

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@gingerw

@lah When you get home, both of you will want a nap or a rest!
No, this is my fourth go 'round with cancer, all were different types. None were metastisized. Three involved surgery, but this last one now is a blood cancer, so cannot do surgery. My husband has not had cancer.
Contact those support groups and ask them for resources for groups that might meet on evenings or the weekends. Perhaps there is even a patient-and-caregiver group you could attend?
Ginger

Jump to this post

Oh wow girl. You've been through a lot! I hope things are looking better for you now!

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@lah. It is so difficult when you feel lost and afraid. When I was first told about my brain lesion, I couldn’t even absorb the information. It was totally foreign. You said that you don’t even know what to do anymore. The only thing you should do is concentrate on taking care of yourself and your husband. Other things can wait. Becky

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Hi @lah, I'm bringing @brenz into this discussion. Her husband started on Vectibix earlier this summer for colon cancer that metastacized to the liver and lungs.

Lah, how did treatment go yesterday? How are you doing?

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It we nt well. No issues.
@brenzbrenz how is your husband doing on the vectibix? Is he still on it?
When was he diagnosed?
Is he as grumpy as my husband? Lol
I looked him sleeping the other day and thought how angelic he looked. (You know, same as you do for toddlers. –get it?) 😉

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