Stage 3a kidney disease: looking for info

Posted by Ryman @ryman, Jul 2, 2022

I just learned today I have stage3a kidney disease. All my doctor told me was that my kidneys showed dehydration. I am clueless and I remembered I used to come here often. So right now I am just looking for basic info. Thank you. I recall this being a very helpful forum.

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@ldrlaw

Dear Susie - what a horrible ordeal you’ve been through. I think there’s some truth to the old saying “grief shared is halved and joy shared is doubled.” I hope this group can offer some support to you. I hadn’t heard about Covid specifically affecting kidneys. In that situation is there any possibility of improving your numbers? Vicki

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Thank you, Vicki. I found a lot of support and learned a lot from the group here. I am being monitored with blood and urine tests and will see if there will be any improvement going forward but no guarantee, according to my doctor. Not enough data with covid cause of kidney problem.

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Can my eGFR improve with subsequent blood tests?

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My eGFR. Number was 38 and I decided that I needed to do something to help bring my no up.and my last blood test was 53
This happened because I started walking, exercising and watched what I was eating.

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@pcjaparis

Can my eGFR improve with subsequent blood tests?

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@pcjaparis Typically, we want to look at trends in our blood tests, rather than a specific date we get tested. There are a couple of reasons for that. Our level of hydration can make a difference in the readings, as can our general health that day, and a difference in the machines doing the analysis.

As you see in the posts here, things can change for us on a wek-by-week basis. Some dsys we feel great, other days, not so much. Keeping adequate hydration, eating healthily [sometimes a challenge this time of year, right!?], moderate exercise, reducing our stress levels as much as possible, all play into our general health, let alone our kidney health. And if we have other health issues, they need to be addressed also. It's a balancing act.

@poon I had an email this morning from DaVita, one of the main players in kidney health websites. They were speaking about kidney care classes, so here is the link they had. You may find that getting some education from them will go a long way in answering some of your questions and concerns. And, remember, I am here is you have anything to ask.

https://www.davita.com/education/kidney-smart-classes?utm_source=acoustic&utm_medium=email&utm_campaign=ks_caregiver&utm_term=november&utm_content=kidney_smart&utm_source=SilverpopMailing&utm_medium=email&utm_campaign=KS_Caregiver_Email3%20(1)&utm_content=&spMailingID=47752244&spUserID=MTEwNzAyMDIyMzcxS0&spJobID=2361420250&spReportId=MjM2MTQyMDI1MAS2
Ginger

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@eva1930

My eGFR. Number was 38 and I decided that I needed to do something to help bring my no up.and my last blood test was 53
This happened because I started walking, exercising and watched what I was eating.

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Good for you - this inspires me to move more myself!

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@ldrlaw

Dear Susie - what a horrible ordeal you’ve been through. I think there’s some truth to the old saying “grief shared is halved and joy shared is doubled.” I hope this group can offer some support to you. I hadn’t heard about Covid specifically affecting kidneys. In that situation is there any possibility of improving your numbers? Vicki

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I hope so, but no doctor knows for sure because not enough data

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@johnbishop

Hi @ryman, I see that you posted a discussion in 2017 on Possible low kidney function - https://connect.mayoclinic.org/discussion/possible-low-kidney-function/. Here's some basic information on stage 3 kidney disease that may be helpful.

"Stage 3 CKD is split into two substages based on your eGFR:
-- Stage 3a means you have an eFGR between 45 and 59
-- Stage 3b means you have an eGFR between 30 and 44
With treatment and healthy life changes, many people in Stage 3 do not move to Stage 4 or Stage 5."
--- Stages of kidney disease: https://www.kidneyfund.org/all-about-kidneys/stages-kidney-disease

There is a discussion focused on stopping or slowing the progression of kidney disease --- Chronic Kidney Disease (CKD): How do I stop progression?: https://connect.mayoclinic.org/discussion/ckd/

Did your doctor offer any suggestions or lifestyle changes that might help you?

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My doctor did not even tell me I had ckd for 18 years. If I had moved to NC, I would never have known. Even here they offer no help. Worried more about High Blood count.

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@sammyloue

My doctor did not even tell me I had ckd for 18 years. If I had moved to NC, I would never have known. Even here they offer no help. Worried more about High Blood count.

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I meant red blood count, Hemoglobin and Hematocrit, possible Polycythemia Vera. Which would be Leukemia.

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@collegeprof

Last year, I was prescribed a diuretic called Torsemide. As I understand, it is popular among nephrologists. After some time, I ended up in the Mayo ER because of dehydration. My GFR dropped significantly to 28 or Stage 4 from Stage 3A, and I stopped the diuretic, and fortunately, went back to Stage 3A. So the problem may appear to be not drinking enough water, so consider checking with your doc on your prescriptions and water intake for episodes of dehydration.

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@collegeprof ~ As a stage 3a myself, I'm still unclear as to how many glasses of water each day is enough - without overtaxing my kidneys to where they may be further damaged. Have any of your medical team mentioned a satisfactory daily total? Thanks!

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I fluctuate between 3A and 3B, and drink a total of 60-64 ounces of water daily. I add lemon to add taste. It does no good, however, to gulp down, say, 20 ounces in one hour to meet your goal. Just drink moderately throughout the day. Your nephrologist can also answer what is best for you.

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