1. < Breast Cancer

Stage 1, very treatable invasive lobular carcinoma

Posted by kandisn @kandisn, Dec 19, 2024

I just talked to my surgeon, and now have to make the decision of a lumpectomy or a mastectomy. My cancer is in my right breast only, and a small tumor, at stage one. I feel very lucky that my cancer was caught early. I am so torn between the opinions. I guess I need to hear other peoples stories. I know it is my decision alone . Thank you for anyone that can share.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

leonielaw | @leonielaw | Jan 2 4:40pm

Thanks I will try tonight.

REPLY
reid123 | @reid123 | Jan 3 10:38am

I was just diagnosed with invasive tubular carcinoma in both breast. They have also found lesions in my brain. I had to take a high dose of prednisone to see if it could possibly shrink the lesions before they say it’s cancer in my brain. I have to wait 2 months to see if medication shrinks it. Meeting first time with my cancer doctor on Wednesday. This is so scary

REPLY
2 replies
reid123 | @reid123 | Jan 3 10:42am
In reply to @kakc19 "Diagnosed stage 1 on 10/10/24. Went with lumpectomy as 3 different MDS from 3 different hospitals..." + (show)
@kakc19

Diagnosed stage 1 on 10/10/24. Went with lumpectomy as 3 different MDS from 3 different hospitals said the same thing.
Radiation starts next week. I do wonder at times if I should have had mastectomy.
Because it was invasive lobular I am having whole breast radiation, which I did not know ahead of time. Now I am at risk for heart and lung complications since it’s my left breast that will be radiated.
I am a nurse and wish it could have all been discussed ahead of time from surgical medical and radiation oncologists viewpoint.
My physician team are from Dana Farber, Mass General, and Brigham Women and I do feel like I have to trust what they say. They all agreed.
Best of luck.

Jump to this post

I have invasive tubular carcinoma in both breast and maybe cancer in the brain. I’m meeting with the surgeon on Wednesday for the first time. I’m praying to make good decisions and for the doctors to be able to help me. This is scary

REPLY
1 reply
katrii | @katrii | Jan 3 11:04am
In reply to @reid123 "I was just diagnosed with invasive tubular carcinoma in both breast. They have also found lesions..." + (show)
@reid123

I was just diagnosed with invasive tubular carcinoma in both breast. They have also found lesions in my brain. I had to take a high dose of prednisone to see if it could possibly shrink the lesions before they say it’s cancer in my brain. I have to wait 2 months to see if medication shrinks it. Meeting first time with my cancer doctor on Wednesday. This is so scary

Jump to this post

Self-care time…meaning, you’ll have this fear until more info comes, but go where you find comfort to get through this hardest of waiting time. For me—a bookstore or three, lots of nature walks (or sits, with a snack!), or a museum. Don’t sit and overthink. Love and hugs to you❣️

REPLY
Rubyslippers | @triciaot | Jan 3 11:23am
In reply to @reid123 "I was just diagnosed with invasive tubular carcinoma in both breast. They have also found lesions..." + (show)
@reid123

I was just diagnosed with invasive tubular carcinoma in both breast. They have also found lesions in my brain. I had to take a high dose of prednisone to see if it could possibly shrink the lesions before they say it’s cancer in my brain. I have to wait 2 months to see if medication shrinks it. Meeting first time with my cancer doctor on Wednesday. This is so scary

Jump to this post

@reid123 Wishing you the best as you meet with the surgeon and find out more about treatment!

If you don’t have a list of questions to ask, here are two links that give good info. The Susan B Komen site has printable pages that you can take with you.
https://www.cancer.org/cancer/types/breast-cancer/understanding-a-breast-cancer-diagnosis/questions-to-ask-your-doctor-about-breast-cancer.html
https://www.komen.org/support-resources/tools/questions-to-ask-your-doctor/
If you’ve been reading answers from this site you’ll see many people request a second opinion. It is often helpful to the local doctor to be able to confer with others in the field. Good doctors welcome collaboration with their peers.
It is usually not too expensive and most insurance companies will pay for a second or third opinion. The Mayo Clinic, Memorial Sloan Kettering, Massachusetts General, MD Anderson, and Stanford all do second opinions. Most have a link on their webpage to find out details of how to make that happen.

Will keep you in my prayers on Wednesday!

REPLY
lifetraveler | @lifetraveler | Jan 4 6:07am
In reply to @reid123 "I have invasive tubular carcinoma in both breast and maybe cancer in the brain. I’m meeting..." + (show)
@reid123

I have invasive tubular carcinoma in both breast and maybe cancer in the brain. I’m meeting with the surgeon on Wednesday for the first time. I’m praying to make good decisions and for the doctors to be able to help me. This is scary

Jump to this post

@reid123 :

I am so sorry for what you've been through;( My heart and prayers go out to you upon reading this post...

Pray for the wisdom, comfort and peace of mind coming from above for you and your care team. I know this is very hard to wait, but please allow your physicians to investigate further without too much stress; because those lesions in your brain may turn out to be benign. You are in our thoughts and prayers, my comrade!

Wishing you the best for the journey ahead!

REPLY
cancerjm | @cancerjm | Jan 5 3:00pm

Indeed THAT decision is very important and difficult to make. I had the same as you and had to make that decision. I was diagnosed June 2024 and had "Lumpectomy" on Sept 12, 2024. Lots done on me/for me before going into surgery as I wanted to be able to make an informed decision. I did the Genealogy Testing, no problem there. I did ultrasound of the left breast, nothing there. I had biopsies done to check margins both in my 2-tumor breast and in my lymphs under my arm, and nothing there. I did the BRACA test, nothing there. So, based on Stage 1, nothing bad in any of the tests I had done, I opted for the lumpectomy! Just make sure you have ALL the information you need to make the decision. I'm just hopping on here now so I believe by now you've probably already proceeded, and I do hope you are happy with your decision. I then had 21 radiation treatments which I just finished on 12/31/24 (Happy New Year to me!) and now taking Anastrozole for 5 years. God bless you.

REPLY
View MoreView Less
Please sign in or register to post a reply.