Spinal cord stimulator removal anyone?

Posted by jaxonsgigi @jaxonsgigi, Jul 10, 2024

CRPS, fibromyalgia, and Small Fiber Neuropathy sufferer. Had a Spinal Cord Stimulator implanted in my 2nd, 3rd and 4th vertebrae and unfortunately I was unable to ever use it, it made my CRPS much worse. I’m scheduled for removal surgery but would love to talk to someone who has gone through the same. I’m told this is a really tough situation because of the placement being in my upper neck. And y th hey took a lot of bone when putting it in and on top of that I have osteoporosis. I’m getting really nervous and the reason besides not being usable is I need to get MRI done and you can’t have any imaging like that when you have a SCS. Anyone gone through a removal?

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@heisenberg34

I was talking to a friend who had his SCS trial back in February. He was pretty excited because it gave him 90% pain reduction. He had the permanent implant last month. So far he has not experienced any pain reduction. He's going back for another adjustment soon. He's pretty disappointed.
I was wondering, why can a trial go so well and, yet, the permanent implant does nothing. Doesn't seem to make sense. I am hoping to hear your experiences and take on this.

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Please keep having the adjustments made. I believe that in time the adjustments will give you 90% pain relief. God bless you

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@brotherchuckles80

Please keep having the adjustments made. I believe that in time the adjustments will give you 90% pain relief. God bless you

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Thank you and you as well!

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Yes, I had mine removed because it wasn't effective and due to the MRI issue. Could your surgeon not leave the catheter in place and just remove the generator ?

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